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"Lucy’s GP diagnosed her with long Covid and referred her to a specialist clinic. The help she got was limited. “Every medic I saw did their best, but it was all so new; nobody knew anything. I got introduced to graded exercise therapy, to try to improve my fitness, but that just set off a...

and if you're a parent researching the condition because your child is suffering with it, face having that used against you in an accusation of FII that could tear your family apart.

Seems extraordinary that a research group at one of the flagship research universities in the country is having to beg for £10 donations on the internet (from a patient population which almost by definition has little spare cash). edited to add: I don't mean this as a reflection on the...

That makes no sense. You can't tell how well a questionnaire is picking up changes unless you have another way of measuring the changes. It's like sticking a thermometer into water at different times and saying 'this will tell us the temperature of the water, and also whether our thermometer is...

That reminded me of this: https://www.newscientist.com/article/dn17064-quack-remedies-spread-by-virtue-of-being-useless/

Week 1: 'Understanding Long Covid' and 'Symptom Recognition'. As long as those symptoms don't include 'being too ill to play tennis'.

Text generators in a nutshell. Great if you want a squishily averaged synthesis of general opinion. Not great if you want factual accuracy - though it can look like it if you're asking about a topic where fact and general opinion happen to more or less overlap.

I feel sad for the kids who underwent that testing presumably in the hope that they were contributing to some meaningful research.

In the Discussion they say "The main limitation is the small sample size. Beyond the participants’ willingness, difficult transportation to the hospital and a pessimistic view of the benefits of rehabilitation played a significant role in participants’ decision to take part or not. It has long...

When the lack of statistically significant differences between the exercise group and control group is so glaring that all you can put under Conclusions is 'Similar studies have reported...'

Not convinced that lumping 'mental health conditions' and 'brain fog' together tells us much about either category of problem.

It's quite telling that she said that as if it meant LC is all in the mind, whereas if you have fatigue/pain + dyautonomia + brainfog then of course it's easier to walk around in a familiar space with short distances between easily accessible resting spots than it is to walk outside where there...

Maybe when the transcript becomes available it'll shed some light.

Can't believe they let the mice read that article by George Monbiot.

From the first page of selected quotes: "It appears that about 50% patients have both MS and ME/CFS" - Prof. Dr. Ron Davis ??

"the time span between positive SARS-CoV-2 PCR and the cerebral MRI did not explain alterations of gray matter DMI parameters or spatial distribution of V-extra changes between the PCC and UPC groups. Thus, one could speculate on a slow or even non-reversibility of microstructural changes...

Small sample, "no significant difference in the absolute values of IA between patients with SSD and healthy controls, regardless of the condition". It's just statistical noise. If they'd done it on another day they might have got results that went the opposite way (more interference with...

In contrast, from the DecodeME transcript above: :emoji_clap:

"#Longcovid related #PEM question: do female patients experience PEM symptoms that align with the menstrual cycle?" In my case, in 2.5 years of long Covid: no.

The Cognitron/GBIT study found measurable, significant post-Covid cognitive impairment with more than 100,000 participants (and that didn't even include a more severe cohort). These researchers trying to say they've disproved that on the basis of 50 people doing a Stroop test is just sad.