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  1. MrMagoo

    United Kingdom: ME Association governance issues

    Maybe he is needed on the board for votes or something.
  2. MrMagoo

    United Kingdom: ME Association governance issues

    Oh so the motion was proposed for inclusion at the AGM before Neil Riley wrote his offensive article? Is this all a kickback from members wanting the MEA to play by the rules? Can the NCVO help in any way?
  3. MrMagoo

    United Kingdom: ME Association governance issues

    Yes, and they’re more mature than him.
  4. MrMagoo

    Preprint Smartphone-based monitoring of heart rate variability and resting heart rate predicts variability in symptom exacerbations..., 2024, Aitken+

    I think it would still be a subjective thing - you’re asking people with cognitive dysfunction to self report their cognitive dysfunction and link it to their heart rate variability? But I’m not a scientist. Based on absolutely no evidence and just my opinion (!) I don’t think it’s a...
  5. MrMagoo

    United Kingdom: ME Association governance issues

    What was their motion, please? Does anyone know.
  6. MrMagoo

    United Kingdom: ME Association governance issues

    They’re called the ME Association, they have a charitable aim to provide information and support. If they only deal in members, not pwME, they need to embargo their magazines and deal more effectively with members so that they don’t feel they must publicly discuss concerns about how the AGM is...
  7. MrMagoo

    Preprint Smartphone-based monitoring of heart rate variability and resting heart rate predicts variability in symptom exacerbations..., 2024, Aitken+

    I like visible, people seem to really fixate on their daily score and it’s a bit prominent so you can’t have see why. Then there is all this next step they want to do - predict a crash. I absolutely don’t see the point of pursuing that. Sometimes there’s a trauma. Sometimes there’s no...
  8. MrMagoo

    United Kingdom: ME Association governance issues

    Boundaries which are pushed can become eroded. He’s overstepped and overstepped and nobody has stopped him, expect it to get worse.
  9. MrMagoo

    United Kingdom: ME Association governance issues

    It’s a story familiar to me from support groups. There’s always someone at or near the helm who wants to inflict themselves on others. Very poor leadership. Of course, in small voluntary situations that’s less serious than when it’s an employee or board member.
  10. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I think personality is also a factor. Lots of people exist in these states which seem opposed; where they study physics and the universe but reverently attend church each week for example. Or preach about the magnitude of sinning or bad behaviour, but then get exposed as holding drug and drink...
  11. MrMagoo

    United Kingdom: ME Association governance issues

    It reads like someone trying to control the narrative. Of course a woman complained about not getting an interview and wrote a complaining email.
  12. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    He will never verbalise that he has doubts or was wrong! Pay no attention to the man behind the curtain! LP, MLM, Cults all follow this pattern of making you “manifest” that all is fine, great in fact. Anyone who doesn’t agree is a suppressive person/bad influence.
  13. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I misread that as melasma lol. I think it’s probably the dark winter nights, more time to spend online chasing head pats in the Xitter echo chamber he’s created.
  14. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I wish he’d go and become a professor of Psychology seeing as he loves it so much. He could do an Open University course. I have a Pavlovian response to his tweets, I make a sound like :dead:
  15. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    It’s getting meta. He’s been convinced he was ill because he thought he was ill and now he wants to convince others. He’s the Pavlovian subject here.
  16. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    This isn’t really a “ u ok hun? DM me” part on the internet, but his sentence structure has gone to pot
  17. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    People who’ve had chemo vomit at the sight of a hospital? Sounds Pavlovian and not very widespread.
  18. MrMagoo

    United Kingdom: ME Association governance issues

    It’s is all a bit bizarre isn’t it? If I were working there I’d be concerned about how Neil is carrying out his role - red flags everywhere.
  19. MrMagoo

    Red Light Therapy Has Anyone Tried it?

    I had the light therapy sauna several times. This was because I got free passes, and I was advised to try the red (you select the colour from the dial/menu) it made no discernible difference although I enjoyed having a free sauna.
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