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  1. MrMagoo

    United Kingdom: ME Association governance issues

    Well I couldn’t be the Chairman of anything, I’m not even on top of ordering groceries.
  2. MrMagoo

    United Kingdom: ME Association governance issues

    It’s a self-cancellation. They have lost the support of the people they claim to represent.
  3. MrMagoo

    United Kingdom: ME Association governance issues

    He’s about to get put in his place, I hope.
  4. MrMagoo

    United Kingdom: ME Association governance issues

    I can believe this. They’ve had enough of containing it, let him loose.
  5. MrMagoo

    United Kingdom: ME Association governance issues

    Absolutely. I’m no comms/PR expert, but this is like something from over 30 years ago! Way to pour oil on a fire. And the bigger issue is that now it appears the organisation is complicit. He may have just near demolished the MEA. Compare and contrast Sonya Choudhry’s recent apology...
  6. MrMagoo

    United Kingdom: ME Association governance issues

    Other people like this around them.
  7. MrMagoo

    United Kingdom: ME Association governance issues

    BPS do, look at Alistair Miller’s article.This is the same behaviour - invalidating to us, and straight out of the abuser’s playbook “If my phrasing gave the wrong impression, then I wholeheartedly apologise”. that’s not an apology, come on
  8. MrMagoo

    United Kingdom: ME Association governance issues

    If I had a pound for every “opinion” I have to close my ears to, I’d be a millionaire. As David Bowie said “I am whatever the greatest number of people believe me to be”. It was “just an opinion piece” means something to press regulators, but not to pwME having this nonsense pushed down their...
  9. MrMagoo

    United Kingdom: ME Association governance issues

    Why am I not surprised. I’ve only ever read the recent article and I just knew he’d be the type who would explain to me in depth that”mansplaining” isn’t real.
  10. MrMagoo

    Perrin Technique

    If you say unkind things to them, they die!
  11. MrMagoo

    United Kingdom: ME Association governance issues

    Good for #ThereForME for taking a stand. At the moment our best advocate seems to be Sonya, except that’s a conflict of interest with her position. And maybe the same with Charles Shepherd.
  12. MrMagoo

    United Kingdom: ME Association news

    Yes they didn’t make that clear at all. It feels like that place is ablaze and CS is there holding a small bottle of water.
  13. MrMagoo

    United Kingdom: ME Association news

    The sub post is a quote from the leaflet (not the view of the MEA we hope) see screening bonus flow chart from the same leaflet showing the factors which may perpetuate CFS- Guilt, denial, anxiety, stress, poor diet, boom and bust…
  14. MrMagoo

    United Kingdom: ME Association news

    No that’s why I do screenies. I’ve added the text now.
  15. MrMagoo

    United Kingdom: ME Association news

    I just looked they didn’t post this (that I could see) they’re currently fighting another fire they accidentally started @Trish does this need its own thread or is this thread the right one please? The post is about the University of Derby Long Covid research team winning an award. The MEA...
  16. MrMagoo

    United Kingdom: ME Association governance issues

    I agree with all the comments, but this is absolutely gold. There’s a pompous privilege in this endeavour, of the sort that has been phased out recently.
  17. MrMagoo

    The Concept of ME/CFS, 2024, Edwards

    I think that commenter is actually trying to agree with the paper and expand on itin a roundabout way and with English as an additional language.
  18. MrMagoo

    What can wage development before and after a G93.3 diagnosis tell us about prognoses for myalgic encephalomyelitis?, 2024, Kielland et al

    It’s so obvious - blaming the patient for not being well and not wanting to get better fits nicely with capitalism. The only way to get attention is to show that money is being wasted and there is economic inactivity. The BPS “fix” of thinking yourself better is a waste of money. Nobody cares...
  19. MrMagoo

    UK: New PIP benefit tool launched

    This isn’t perfect, but it is flipping brilliant!
  20. MrMagoo

    Perrin Technique

    Or maybe that’s a picture from 2010!
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