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Think back to the difficulty getting hand gel and eggs....

Now I am a regular customer of Milk and More, I can order things like bread, juice, organic fruit and veg from them as one off orders. I'm trying to keep options open for the winter.

Yep. I'm gradually trying to build up more organic items in my cupboard, then I will give all the multiple cans of tomatoes, Heinz soup, remaining cheap government issued pasta etc., to the local food bank. I've also started to get a pint of milk 3 times a week from Milk and More (they only...

Ocado priced matched my order and have given me a 1 pence credit towards my next order. Can't wait to treat myself....

In England teachers are not allowed to mark students books (or at least not unless the books have been 'quarantined' for 72 hours minimum, which isn't practical in most cases). So it seems they are erring on the cautious side about this, at least at the present time.

I got my first Ocado order today and was pleased with it. I didn't buy much fresh produce as I have Riverford for this, but what I did order had satisfactory dates. I was impressed that they colour code the plastic bags for freezer, fridge and cupboard! That made it so much easier to pace the...

Just because UK ESA and PIP benefits assess a specific set of (very limited) functional abilities, doesn't mean that this approach is actually the best approach for what they are intended to do. Many people argue that these assessments should be looking at how an individual can manage in the...

With M.E., surely fatigability is a key symptom? So being able to repeat an activity is highly relevant. The same with PEM. Any scale that doesn't address these concepts isn't going to register a meaningful improvement and actually that in itself means it would be easy for a practitioner to...

I'll have to bow out of the conversation for a while as I was reading this thread while having a break from reading PIP case law, to help fill out a friend's PIP health questionnaire! Seeing how hard it is for even judges to understand a person's physical and mental functional limitations made...

I meant a scale that is intended to be filled out every day to see daily and weekly fluctuations and help with pacing, as Trish had implied, would be too individualised for general research purposes.

I am not sure how useful this would be for research purposes as it becomes very individualised. However, this seems like a good idea, to create a list of questions that would make a standardised 'activity diary' template for PWME (from mild to very severe). I can see that would be extremely...

I suggested the PIP 'reliability' criteria, because this is well defined after being put together by a large range of disability groups specifically to capture functioning in fluctuating conditions, including M.E.. So people in the UK are familiar with it (and it has been well tested through...

Yes, it gets complex, doesn't it! I think that is why the ESA and PIP refer to being able to do routine activities and follow known routes first then ask about whether you can do an unfamiliar activity or follow an unfamiliar route. This is very significant. I was able to judge how much my...

You have to remember what is 'clear' to you won't necessarily be clear to another person. Which is why I have suggested you use tems that have an established meaning in law (for example the ESA and PIP criteria and the term 'reliably'). At least then a professional would have no excuse or room...

That concept would need to be refined as it is still too subjective and can mean different things to different people. Any scale should be able to be answered by those with cognitive impairments and neurological differences (such as those with autism who require things to be stated in clear...

I cannot use a shower due to sensory issues as I cannot tolerate the feel of the water spraying on my skin. I wash myself by bathing. Therefore it seems better to ask people whether they are able to wash themselves, rather than assuming they can shower. The PIP criteria split washing into upper...

Some activities, like physically shopping, require both physical and cognitive functioning. Other activities, like placing an online supermarket order could be more reasonably conceived as 'cognitive', although it would still require the person to be able to use a computer or smart phone and...

But what if doing one thing off the list means you can't do the other things? It still has the problem of being completely subjective as the person cannot know if they can do the activity unless they actually try to do it, their answer would be a 'best guess' hypothetical one if based on...

Other suggestions for the list: Can you tolerate a light being on in your room? For one minute, 30 minutes, an hour etc.? Can you tolerate the sound of voices in your room/outside? For one minute, 30 minutes etc.? Can you tolerate the sound of traffic outside your room? Other normal noises etc...

The other issue is that I never know if I can complete an activity until I actually start it as I can never assess my own functional ability, which fluctuates even minute to minute, as well as hour to hour and day to day. Starting activities are also very problematic for me, but that may be...