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  1. Midnattsol

    Good nutrition when energy is very low

    I'm not sure I'm understanding you. With diabetes we typically talk about either not having enough insulin to get glucose into the cells, or insulin resistance so that even when there is insulin present the cells still don't take in enough glucose. The problem in both cases is geting glucose out...
  2. Midnattsol

    Good nutrition when energy is very low

    Different sources of proteins have different digestability though. Barring a problem with lactose or milk protein, milk should be easy enough to digest. With meat, fish and chicken are easier to digest than pork or other red meats. Lean cuts are easier to digest than fatty ones (at the expense...
  3. Midnattsol

    Good nutrition when energy is very low

    As far as I know there's no evidence of increased blood glucose levels in pwME, so it doesn't seem like our cells does not take up glucose for glycolysis. The increase in lactate that has been reported points to glycolysis working fine, but the process downstream of glycolysis (before the...
  4. Midnattsol

    Can dieticians (dietitians) help with ME/CFS?

    I can say some of those things you mentioned has been improved upon in the education at least (such as the effects of chemo, meal timing with parkinsons, advice for diabetics), but that doesn't mean everyone knows :/ I'm assuming the education is similar between Norway and UK as if you have the...
  5. Midnattsol

    Good nutrition when energy is very low

    Depends on what you mean by benefit, regarding digestive issues, nausea etc I (as mild) only have this problem when crashed, so they would not be necessary except in a crashed state (I don't care for the taste much, but I'm also lucky to have a boyfriend that can cook simple meals for me when...
  6. Midnattsol

    Can dieticians (dietitians) help with ME/CFS?

    Registered dietitians usually work in a hospital, yes. There are so many other titles people can use if they want to provide nutritional advice, it's maddening! And makes it very hard for patients to know what qualifications the person actually have. In Norway we have "ernæringsfysiolog"...
  7. Midnattsol

    Can dieticians (dietitians) help with ME/CFS?

    These issues are more or less covered in guidelines for patients with limited digestive capabilities and/or nausea or other symptoms that limit their food intake (including sensory aversion), but it would help to know that these issues are relevant to the care of pwME. Smoothies for example can...
  8. Midnattsol

    Can dieticians (dietitians) help with ME/CFS?

    Posts moved from NICE ME/CFS guideline - draft published for consultation - 10th November 2020 I agree with this :) I hope dietitians can get to use the knowledge we have about other life-limiting diseases that influence the ability to maintain proper food intake. One of the most used books...
  9. Midnattsol

    BPS attempts at psychologizing Long Covid

    This exchange made my day, I can see later today if I manage an english translation o the whole thing. The gist of it is that Johansson asks for humility and that people should be willing to listen. She is then confrotned with a talk she gave where she talks about how symptoms can become more...
  10. Midnattsol

    BPS attempts at psychologizing Long Covid

    They say the ward will close but open at a new location at the hospital, and link to this article: https://www.svt.se/nyheter/lokalt/stockholm/10-000-stockholmare-med-misstankt-langtidscovid?fbclid=IwAR1gFjKFHtefxEAUORsH7aUwmqubiQRW2a9GTD-GKEaOv2OYLIvXP4j6UBA You know what also creates concern...
  11. Midnattsol

    BPS attempts at psychologizing Long Covid

    The swedish debate has now spilled over into Norway with an article in Aftenposten. They talk to Lisa Noren, a doctor with long covid, and also with a swedish BPS proponent who referred to Henrik Vogt who has also been interviewed. Sverige har egne mottak for dem som sliter etter korona. Legen...
  12. Midnattsol

    Vitamin D and ME

    Are you sure it's recent? I find an article of hers from 2009 with 235 South Asian women from Auckland. Notably, to be included in the study these women had to be insulin resistant, vitamin D deficient (defined as <50 nmol/L) and not take vitamin D supplements of >25 mcg/day. After six months of...
  13. Midnattsol

    Vitamin D and ME

    I wish more doctors knew more about vitamins. Thanks! By skimming the names of the references from grassroothealth I'm not so sure about the conclusions made, a comparison of a group with 20 ng/ml to a group with 40 ng/ml cannot say if a level of >30 ng/ml is enough. Will have to read them a...
  14. Midnattsol

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    Yes. I looked through it again and it's not from the paper itself, which only includes the possible explanation that the programmet did not include a GET component, but from an interview with Wyller (in Norwegian, translated by me):
  15. Midnattsol

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    In Wyller's music therapy study they did make the point that the reduced step count in the intervention group could be because participants learned to rest more and listen to their bodies, if I remember correctly.
  16. Midnattsol

    Too much salt suppresses phagocytes

    I've seen complex two mentioned in the context of ME as well, but I can't remember where. Exposing the immune cells to salt outside the body is not the same as what happens in the body when we eat salt. Giving someone a 6gr supplement of salt seems silly, as a rule of thumb we're told that...
  17. Midnattsol

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    I don't understand how some people keep arguing that the psychologizing is a thing of the past, though. If it is so obvious why haven't it been made more clear to those working with patients?
  18. Midnattsol

    Vitamin D and ME

    I know many with MS that have been recommended to have vitamin D levels >75 nmol, and they also recommend that at the university I'm at. I wouldn't really mind if pwME were told the same, but I don't see where the >100 nmol/L value comes from.
  19. Midnattsol

    Vitamin D and ME

    Coming from the northern part of Norway, where many are insufficient, that is not my experience. My GP's have often been very mistaken about how easy it is to get adequate vitamin D. I do somewhat enjoy being told that eggs and butter is a good source of the vitamin though, and that the sun in...
  20. Midnattsol

    Vitamin D and ME

    Yes, below 25 nmol/L we get skeletal deformities; rickets in children and osteomalacia in adults. So most countries have a lower reference range between 30-50 nmol/L to cover any potential extraskeletal effects of vitamin D. Those who most strongly believe in the extraskeletal effects have...
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