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  1. Peter T

    In progress: Fatigue - Reducing its Effects through individualised support Episodes in Inflammatory Arthritis (FREE-IA): A Feasibility Study.., Dures

    Do we know that ‘fatigue’ (presumably idiopathic) is something that can be treated by CBT and GET, there has just not been the research? Such as PACE is equally bad at answering any questions about intervention for the symptom of chronic fatigue in isolation as it is about treatment for ME. The...
  2. Peter T

    Healthcare Hubris - blogs on the biopsychosocial model by Joanne Hunt

    Presumably this question is aimed at picking up patients with false beliefs. It is based on an implicit assumption that the doctor is always right, and any one that disagrees with ‘him’ (deliberately chose not to be gender neutral, to raise the gender issues, it would be interested to know if...
  3. Peter T

    Possible chronic viral infection in ME/CFS (& other illnesses inc Long covid). Discussion.

    I don’t have strong views either way on the persistent or recurrent virus theory, and a total failure to identify any ongoing presence of the trigger virus is a problem for this approach, however not an insurmountable one. If I have not misunderstood, don’t some already propose that the...
  4. Peter T

    Healthcare Hubris - blogs on the biopsychosocial model by Joanne Hunt

    Much easier to ready. Especially as I will need to read each several times to fully assimilate.
  5. Peter T

    Healthcare Hubris - blogs on the biopsychosocial model by Joanne Hunt

    I managed to read the font but found it more tiring and consequently harder to understand the content. @JemPD, if you do get permission to create a more readable format would it be work asking if any files could be posted here or added as comments to the original blogs? [added I struggled with...
  6. Peter T

    Healthcare Hubris - blogs on the biopsychosocial model by Joanne Hunt

    Have so far just read the first blog. It is a very important topic and covers much history that I was not aware of. However, though agreeing with what is said, did the blog present enough evidence to draw such strong conclusions. Though I agree cost reduction and profit is the best fit for...
  7. Peter T

    Are there any studies that include bedbound CFS patiënts playing tennis within 6 months?

    There was someone a few years back selling their own ‘miracle cure’ whose life was centred around their local tennis club. They may have been or have become a tennis coach. I can’t remember if it was one if those dreaded magazine or popular newspaper articles that advocated hard work and...
  8. Peter T

    In progress: Measuring Health in Children with CFS/ME: Refinement, application and evaluation of new PROM (PEACH) in routine practice, Crawley et al

    Should we start a petition demanding that Prof Crawley be limited to only one acronym a year, though even that is one to many.
  9. Peter T

    Preprint: The Rise And Fall Of The Wessely School, 2021, Marks

    I am looking forward to reading the article in full, but wonder if there is a danger in using phrases like the ‘Wessely School’ as it suggested a stronger coherence of thought amongst the BPS advocates than actually exists. Are we in danger of doing what the members of the Wessely School...
  10. Peter T

    Over which physiological abnormalities in ME/CFS is there a scientific consensus about?

    Given our current knowledge is it reasonable to expect anywhere near 100% on any physiological measure. We have a range of operational definitions of ME/CFS which are evolving in a bit of a ‘pulling ourselves up with our own boot straps’ way, that we reasonably hope refer to a real biomedical...
  11. Peter T

    NICE ME/CFS draft guideline - publication dates and delays 2020

    This is very possible, as technically there are no minutes for a meeting until the draft minutes have been responded to, if necessary altered and then adopted at the next meeting. When I used to put my parish council meeting minutes on our community website, the parish council wanted something...
  12. Peter T

    A person-centred test of multidimensional perfectionism and health in people with chronic fatigue syndrome versus healthy controls, 2021, Sirois et al

    Presumable the additional dimensions are those of the BPS universe, made up entirely of unreal concepts, a sort of anti-platonic hell of non forms. For such as a circle to exist, it must be represented in the heaven of forms, so for the BPS non constructs to exist they must be represented a hell...
  13. Peter T

    Pediatric long-COVID: An overlooked phenomenon?. 2021, Brackel et al

    When reading the symptom lists of ‘ME like Long Covid’, as in this paper, it seems much shorter than most people (adults and children) with ME experience. Is this related to the fact that most patient studied are still in the early stages of their condition, I would regard even a year to...
  14. Peter T

    A proprietary herbal drug Young Yum Pill ameliorates chronic fatigue syndrome in mice, 2021, Yin et al

    Interestingly, though mice do not seem to be interested in holidays, moles are. Previously, when I had mice in the house, I used ‘humane’ traps, then releasing the mice elsewhere. If released near enough to home <half a mile, they return as quickly as they can, often going straight back to the...
  15. Peter T

    Long Haulers—What Is the Evidence for Post-COVID Fatigue?, 2021, Stengl et al

    ‘There is evidence that Long Covid’ exists so let’s just apply all the things we made up about other related symptom sets without any meaningful evidence base to that as well’.
  16. Peter T

    UK: NHS data sharing – deadline imminent

    Do we know if the June deadline for patients opting out has been extended or if it remains the 23rd of June? I could not find anything on this in the couple of articles I read.
  17. Peter T

    Efficacy of therapist-delivered transdiagnostic CBT for patients with persistent physical symptoms in secondary care: an RCT, 2021, Chalder et al

    Started looking to see what the Journal’s policy on after the fact deviations from the original protocol is, but not up to reading the full text of their publication ethics policy and the COPE policies which they claim to be bound by (...
  18. Peter T

    Lightning Process study in Norway - Given Ethics Approval February 2022

    For non Norwegian speakers like me, Google translate renders Live Landmark’s tweet ‘PEM er ikke spesifikt og kan kun måles via spørreskjemaer’ into English as ‘PEM is not specific and can only be measured via questionnaires.’ This demonstrates an ongoing failure to understand ME and what its...
  19. Peter T

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Also there is a strong financial incentive for any LP Coach to rebrand themselves and move away from sending a large portion of their fees to PP. The former LP coach that made her way onto a national GP conference line up in New Zealand a year or so ago, had disaffiliated herself from the...
  20. Peter T

    Comparing Idiopathic Chronic Fatigue and ME/CFS: Response to 2-day CPET, two papers males & females, 2021, Van Campen & Visser

    Also studies like this are so import in developing our understanding and definitions of what PEM is, and to distinguish it from the widespread confusion with increased fatiguability. The same researchers that struggle to differentiate ME/CFS from ICF, fail to understand that PEM is a...
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