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I've started a new thread for Elin Lindsäter's related research study (currently recruiting): https://www.s4me.info/threads/sweden-psychological-treatment-for-severe-fatigue-a-feasibility-study-linds%C3%A4ter-et-al.39238/

I've started a new thread for Elin Lindsäter's related research study (currently recruiting): https://www.s4me.info/threads/sweden-psychological-treatment-for-severe-fatigue-a-feasibility-study-linds%C3%A4ter-et-al.39238/

For those of you who would like some extra help to better understand the problems with this study, do read MEdagboken's posts on Instagram, and the blog PACE-granskaren (both are in Swedish).

Do click through and read @MittEremltage's blog post on this study, where you'll also be able to download a copy of the ethical approval application with all the facts. Ändra dina tankemönster och lev ditt liv som du vill...

This study is potentially very significant in relation to the political decision that led to major changes in the healthcare for pwME in Stockholm, Sweden, including updated guidelines in viss.nu for ME in primary care. Read more about this here and here in the News from Scandinavia thread.

Continued:

A Swedish psychosocial study about CBT and gradual increase in activity (physical activity as in walking or cycling, as well as mental and social activity), is currently recruiting. It is led by Elin Lindsäter, BPS proponent and member of the Oslo Consortium. This is not a recommendation! I...

An update today: Viss.nu har gjort vissa ändringar https://mitteremitage.wordpress.com/2024/07/06/viss-nu-har-gjort-vissa-andringar/ (Posted in the News from Scandinavia thread too, with auto-translated quotes.)

More about this, in today's blog post by @MittEremltage. Much appreciated as always, thank you! :thumbsup: A massive thank you to the independend activist/patient advocate(s) who contacted Viss.nu to request these changes, excellent effort! No thanks to RME (the Swedish ME Association) though...

A member of the Oslo Consortium seems to have made some seriously worrying changes to Region Stockholm's guidelines for ME/CFS. @MittEremltage has blogged about it here: Region Stockholm uppdaterar vårdprogram för ME med ovetenskapliga påståenden om KBT och gradvis utökad aktivitet...

Another very important blog post by @MittEremltage, taking a detailed look at the seriously worrying changes to Region Stockholm's guidelines for ME/CFS. Do click through and read the whole article. Thank you so much, MittEremitage :thumbsup: Genomgång av ändringar i vårdprogram för ME i...

New blog post by @MittEremltage, highlighting some really worrying changes in Region Stockholm, seemingly linked to the Oslo Consortium. Region Stockholm uppdaterar vårdprogram för ME med ovetenskapliga påståenden om KBT och gradvis utökad aktivitet...

(Not ME specific.) Sweden: Patient researcher Sara Riggare (https://www.riggare.se and https://www.spetspatienterna.se) and Therese Scott Duncan at E-health and Health Data at Uppsala University, are inviting people to participate in their latest research study...

"It is a little-known fact that chronic inflammation causes depressed mood. I want to show you where in the brain this occurs, and why it makes no sense to tell someone with FM, ME/CFS, GWI, MCAS, or other chronic conditions that they "are just depressed". - Jarred Younger"

"Can healthcare cure our new widespread disease - post-covid?", a video (54 minutes) by Pandemifonden, recorded today at Almedalsveckan (a Swedish yearly political "festival"). Panelists: • Lisa Noren, MD, Swedish Covid Association • Marie Morell, Regional council member, Östergötland • Marcus...

(Not ME.) POTS is mentioned in an article in one of Swedens two largest evening newspapers today. Christina Applegates nya sorg: Dottern sjuk https://www.expressen.se/noje/christina-applegates-nya-sorg-dottern-sjuk/

"Here is some preliminary data from my lab on resveratrol for inflammatory pain and fatigue. It is still too early to recommend resveratrol for Gulf War Illness, fibromyalgia, or chronic fatigue syndrome. We are following up with a larger clinical trial right now. The paper is open access and...

I didn't have OI before ME. OI was among the very first symptoms that appeared when I got ME (symptoms started after a hepatitis A+B vaccination). I've always had low blood pressure, but never had any symptoms related to blood pressure before ME.

Yes, I'd love to see more studies doing that! It's such a major factor for so many of us with dysautonomia.

New blog post by @MittEremltage, highlighting some of the harmful consequences that are affecting pwME due to the political decisions of Region Stockholm. Really well-written and important, as always. Great work, thank you so much MittEremltage! :thumbsup: It's a horrible situation, and I...