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Vetenskapsradion Hälsa: Det här vet forskarna om långtidscovid just nu https://sverigesradio.se/avsnitt/vetenskapsradion-halsa Sympathetic and informative news segment/podcast episode. They are talking about long covid research, an ongoing Swedish Paxlovid study among other things. 124...

Swedish news segment today (audio, 2 minutes): Fler drabbas av autoimmuna sjukdomar efter covid-19 https://sverigesradio.se/artikel/fler-drabbas-av-autoimmuna-sjukdomar-efter-covid-19

So good to hear that they keep moving forward with this! :thumbsup:

I noticed a familiar name among the authors of this Swedish opinion piece, published today, that questions and calls for a delay of proposed law changes that would make it less difficult for trans people to change their registered gender and/or get gender-affirming surgery. Mats Reimer, a BPS...

I just wanted to add that it's not just the media that is ignoring ME and PEM. I've been seeing some worrying comments on social media as well, by patients at the Swedish long covid clinics. For example, one of the main clinics that accepts pwPOTS (the cardio vascular centre at Karolinska...

@MittEremltage comments on her blog today: Ett svek skadar! https://mitteremitage.wordpress.com/2024/03/10/ett-svek-skadar/

Fairly long article on long covid today, in one of Sweden's largest newspapers. It's a sympathetic and very informative article, but ME is again not mentioned (annoying, especially since Petter Brodin used to do research on ME). Fyra år efter pandemins början: Inom ett år har vi läkemedel mot...

Impact of COVID-19 infection on baseline autonomic symptoms in patients with preexisting postural tachycardia syndrome and orthostatic intolerance: A retrospective study Abstract Background Postural orthostatic tachycardia syndrome (POTS) and dysautonomia following a SARS-CoV-2 infection have...

News segment on Swedish radio (1 min 40 secs): FHM-rapport tar inte upp hur barn påverkats av covid https://sverigesradio.se/artikel/fhm-rapport-tar-inte-upp-hur-barn-paverkats-av-covid?s=03

What do you all think about the Swedish Covid Association's content for Long Covid Awareness Day, 15 March 2024? https://covidforeningen.se/uppmarksamma-long-covid-awareness-day-2024/ Does it remind you of something? ('Vem saknas?' = 'Who is missing?') ME is not mentioned.

Yes, lots of angry and sad and frustrated comments all over social media, not only from researchers and activists but people in general I'd say. Especially disabled and immunocompromised people, as well as pwLC. Todd Davenport of Workwell has been tweeting about it too, including a retweet of...

The advice he's referring to is that CDC has shortened the recommended isolation period for individuals who test positive for COVID. Formerly five days, now only 24 hours. "The recommendations suggest returning to normal activities when, for at least 24 hours, symptoms are improving overall...

@PutrinoLab on Twitter: "Tragic to say this out loud, but here it is: As a #LongCOVID researcher, I strongly urge the public to ignore recent @CDCgov guidance and input from @CDCDirector on the topic of #COVID. It is NOT based on consensus science and it has NOT been designed to protect you...

The study says: "Some common symptoms, such as fatigue, were not specifically assessed though were reported by some under “other symptoms” owing to the lower prevalence of 9.5% in this study. The lower prevalence may also be due to our clinic’s protocol, as patients presenting to our...

Dysautonomia International on Facebook says: "New research from Mayo Clinic finds that the different “phenotypes” of #POTS (hyperadrenergic, hypovolemic, neuropathic) can’t be distinguished based on symptoms, and that many patients experience more than one of the phenotypes. They also note that...

Abstract Postural orthostatic tachycardia syndrome (POTS) presents heterogeneously and is diagnosed when appropriate symptoms are present in conjunction with a heart rate increase of at least 30 beats-per-minute upon standing without orthostatic hypotension. Much of the current understanding...