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“In 2024, it’s time to talk about asexuality – and to finally tackle the dehumanising discrimination asexual women face” https://www.stylist.co.uk/opinion/asexuality-asexual-discrimination-acephobia-yasmin-benoit-stonewall-research/855236

Excellent blog post by @MittEremltage, in Swedish: Bra utformade studier är viktigare än register https://mitteremitage.wordpress.com/2024/01/11/bra-utformade-studier-ar-viktigare-an-register/

PwME who have asked for a referral to the clinic have now started receiving replies, and are posting on social media about it. Seems like it was just empty words... :grumpy::( Here's a auto-translated quote from a typical reply from the clinic, received by a severely ill pwME whose referral was...

Do you happen to know any Jehova's Witnesses or someone with similar restrictions around medical stuff for religious reasons? If so, I think asking them for facts and advice could maybe be a good place to start? I know JW's have professionals in their organisation who are used to dealing with...

Not ME. For what it's worth: An essay about placebo research, Ted Kaptchuk and more, written by a medical anthropologist. Today, in the very large Swedish newspaper DN.se. Lisbeth Sachs: Inbillningens kraft tar plats i den medicinska forskningen...

A Finnish translation of this article is available on the patient association Suomen lääketieteellinen ME/CFS-yhdistys ry's website...

It doesn't say in the interview if Maroti has treated and tried to recover from his MUS (ie restore his iron levels and the missing cartilage in his knee) through EAET or CBT, and if so whether the treatment was successful or not :whistle:

I agree with you completely. It doesn't make any sense at all.

ETA: Re: "Usually used in the UK to describe someone who is incompetent or gormless." I forgot to add that this is also exactly how the term "muppets" ("muppar" in Swedish) is used where I live, in Sweden. ETA: Sorry about the emoji getting lost when I copied it from the Facebook app. I didn't...

He says they happened at a time in his life with lots of psychological stress, but doesn't go much into detail beyond that.

Link to the 2017 study mentioned in the article: Differences in alexithymia and emotional awareness in exhaustion syndrome and chronic fatigue syndrome Daniel Maroti, Peter Molander, Indre Bileviciute-Ljungar https://onlinelibrary.wiley.com/doi/10.1111/sjop.12332

Another article published in September 2023: Funktionella somatiska symtom och nya behandlingsperspektiv: Psykodynamisk känslofokuserad korttidsterapi har god effekt...

Interview with Maroti in Psykologtidningen, published September 2023. Including some personal background info on why he chose this particular field (sick family members, and himself suffering from MUS in the form of iron deficiency and a knee injury)...

Per Fink was Maroti's opponent at his disputation (EAET) in January 2023. Indre Bileviciute-Ljungar one of his advisors. Titel: Internet-based emotional awareness and expression therapy for functional somatic disorders https://nyheter.ki.se/kalender/disputation-daniel-maroti

There's a pretty insulting comment by one of the psychologists responsible for the study, under Maroti's public Facebook post about the study. Is he not aware of the "a day with the muppets" debacle, or does he simply not give a eff? Very good to see, though, that Nina E Steinkopf and others...

There was an ad in the newspaper DN.se today, inviting people to apply to participate in this study by Swedish BPS proponents Daniel Maroti et al (who are also running the MBS study). Not a recommendation, obvs. Känslofokuserade digitala interventioner för patienter med medicinskt oförklarade...

Here's some more context from Putrino's thread: "I don't like any confusion or lack of transparency about our thoughts'/approaches regarding our research strategy surrounding #LongCOVID, chronic #Lyme, #MECFS, vaccine injury and other complex chronic illnesses that we study, so I wanted to post...

Has this been shared already? I've listened to about one third of it now, and I think it's really good :thumbsup: Norges Myalgisk Encefalopati Forening: HOLD UT - foredrag med psykologspesialist Frøydis Lilledalen

A Finnish news article, published today: Niko, 32, elää sängyn omana, käy vessassakin vain kolmesti viikossa: "Minut nähdään eläkeyhtiössäni täysin työkykyisenä"...

Not ME. Anställda på Sahlgrenska blev mystiskt sjuka – nu vet de varför https://www.dn.se/sverige/anstallda-pa-sahlgrenska-blev-mystiskt-sjuka-nu-vet-de-varfor/