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In Sweden there's a product called Dextro Energy. I don't know if there's something similar available where you are? They are tablets that contain 89% dextrose ("a simple sugar made from corn or wheat that's chemically identical to glucose, or blood sugar"), and are used to quickly raise your...

A non-fiction book about living with long covid, in Swedish. Published in March, 2023. Jag är inte här, det här händer inte Annah Björk

A book review by Swedish BPS proponent David Gyll in the journal of the Swedish Medical Association. The book being reviewed is "Komplexa syndrom. Om vanliga kontroversiella och svårbegripliga sjukdomstillstånd" by Peter Währborg. Svårvärderad bok om svåra tillstånd...

In the post linked above, Bragée explains why they are closing ME-center early: "compensation levels have been reduced as of February this year, in a way that makes it impossible to continue for the rest of the year." However, according to recent correspondence ("allmän handling"/a public...

Another opinion piece on ME by Swedish BPS/"cultural illness" proponent Hanne Kjöller :grumpy: She has been talking to Landmark and Vogt, apparently. Vad ska läkaren göra om valet står mellan att kränka eller skada patienten...

But whyyyyyy?! :eek::nailbiting:

"Utnyttja kompetensen vi byggt upp på humansidan" https://www.slu.se/fakulteter/vh/forskning/gastprofessorer/jonas-bergquist/ Google Translate, English ("Utilise the skills we have built up on the human side") Lovely interview :):thumbsup: :emoji_horse:

(Not about ME) :emoji_horse: Prof Bergquist has recently been appointed Inspector Equitandi at Uppsala University. This interview is about horseback riding: Professorn som vill att fler ska umgås med hästar https://www.tidningenridsport.se/professorn-som-vill-att-fler-ska-umgas-med-hastar/...

I've posted several times before about how ME and long covid have often been framed as a so called "cultural illnesses" in Sweden, especially in the media. Here's another example (not a recommendation, obviously) of how the same narrative and the same arguments are used against another...

Pacing for PEM/PESE

The Association for Difficult-to-Diagnose Infectious Diseases, a (problematic) patient organisation for ME, post-covid, post lyme and other vector born diseases, fibromyalgia etc. Yes. Evidence, facts and patient safety are sadly not among their priorities, it seems. They are big on promoting...

Bragée Clinics are apparently supporting unevidenced treatments for ME. Not sure how else to interpret the fact that Björn Bragée is featured in a campaign video by FSI, and this article published on their webpage: FSI larmar i skrivelse och film https://www.bragee.se/detta-ar-en-meljon FSI...

Me-Center stänger i december 2023 https://www.bragee.se/me-center-stanger-i-december-2023 Google Translate, English ("Me-Center closes in December 2023")

Nytt svar på ME-gåtan Unik studie från Bragée ME-center och Linköpings universitet https://www.bragee.se/nytt-svar-pa-me-gatan Google Translate, English ("New answer to the ME mystery")

I randomly came across an article on McArdle disease (a genetic disorder that mainly affects skeletal muscles), and found the description of exertion intolerance both interesting and relatable. Does anyone here know if there has been any scientific attempts to compare the exertion intolerance...

Same. 100% agree! Sometimes a big glass or two of Resorb can make the difference between being able to keep your body upright for long enough to use the toilet, or fainting on the way there... Doesn't have to be a cure or help long-term to be incredible valuable.

Jonas Hellberg, a well-known athletic trainer working in professional soccer in Sweden, has sadly passed away at the age of 53. He talked openly about living with long covid in several interviews. Cause of death has not been made public. IFK Göteborgs förre fystränare Jonas Hellberg är död...

Thank you so much for adding this! Very helpful :) Same here. But only one particular kind of ORS (Swedish brand name is Resorb, contains glucose which the others usually don't).

Some evidence (for ORS) have been discussed earlier on the forum. I think a study by Medow et al for example, and something by Peter Rowe maybe? Unless I'm misremembering. (Sorry, too ill to search for and link posts.)

Thank you so much for adding these :)