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I'd say it's more than that, though. For example, they also share/discuss many different reasons why it's not always easy or possible to just drink more water (gastroparesis, nausea, urinary incontinence, etc), as well as ideas for how to make it easier if you for example often forget to drink...

Why telling pwOI to just drink more water might not be as helpful as you'd think. I feel this Instagram post is worth a read, including the comments.

ME/CFS–utmaningar och möjligheter i Primärvården https://www.akademisktprimarvardscentrum.se/utbildning/utbildningskatalog/mecfs---utmaningar-och-mojligheter-i-primarvarden222/

Do read the comments on Folkbladet Västerbotten's Facebook post. They bring up some really important points about what's missing in the article.

Polisanmäld läkare anklagar regiondirektören för kränkning: ”Utsett mig som syndabock” https://www.folkbladet.nu/2023-07-02/polisanmald-lakare-anklagar-regiondirektoren-for-krankning-utsett-mig-som-syndabock-0e4e9 Very long article, lots of details on some of the wrongs that have been...

Opinion piece Sverige måste satsa på specialistvård för postinfektiösa tillstånd https://www.altinget.se/vard/artikel/sverige-maaste-satsa-paa-specialistvaard-for-postinfektiosa-tillstaand Google Translate, English

@ArturFedorowski "Microvascular Dysfunction and Reduced Cardiac Stress Reactivity in POTS Associated With Postacute COVID-19 | Circulation:Arrhythmia Electrophysiology" "New data from Karolinska, SWE. PostCOVID POTS is not only about heart rate but also about small vessels"

RME (the Swedish ME Association) has posted a video on YouTube (9 minutes) where their chairperson talks about the situation now that Bragée ME-center, ie Sweden's only ME specialist center, is being closed down. I'm too ill to watch, so I don't know what kind of info they are sharing. I...

The Swedish patient organisation RME has posted another video by Bragée ME-center. Björn Bragée talks about pain and ME.

Yes, I have a cooling mat (meant for dogs) and it does help. However, what helps me the most is the Dyson Cool tower fan I bought last year. Love it to bits :inlove:

Info about the POTS study mentioned by the physiotherapist Malin Nygren-Bonnier in the news article linked above. Physical Training in Patients With POTS After Covid-19 (POTS-ReCOV) https://clinicaltrials.gov/ct2/show/NCT05094622?term=malin+nygren+bonnier&draw=2&rank=3 ...and some other...

A previous study Tryfonos has been involved in: Post-exercise endothelial function is not associated with extracellular vesicle release in healthy young males https://cdnsciencepub.com/doi/abs/10.1139/apnm-2022-0278

Article i one of Sweden's biggest newspapers: Trotsade postcovid-råd – Sanna, 41, springer igen https://www.svd.se/a/bgWL63/postcovidsjuka-sanna-springer-igen-trots-traningsintolerans

Exercise Intolerance in Post-COVID Patients (EXILE) https://clinicaltrials.gov/ct2/show/NCT05445830?term=tryfonos&draw=2&rank=1 Official study title: Physiological Characterization of Functional Limitations and Exercise Intolerance in Post-COVID Patients Thomas Gustafsson, Helene Rundqvist...

imPROving Quality of LIFe In the Long COVID Patient (PROLIFIC) https://clinicaltrials.gov/ct2/show/NCT05823896 Petter Brodin Karolinska Institutet, Sweden "Brief Summary: The purpose of this study is to investigate the efficacy of orally administered nirmatrelvir/ritonavir compared with...

The Swedish patient organisation RME has posted a video about neurological symptoms. I find this bit (ie their explanation for these symptoms) problematic:

Andreasson is quoted in a news article about long covid today.

Bergquist is quoted in a news article about long covid today.

An article in one of Sweden's largest newspapers today. ME is mentioned. Prof Jonas Bergquist and BPS proponent/researcher Anna Andreasson are quoted. Postcovid-gåtan – varför sätts vissas liv på paus? https://www.svd.se/a/GMq4jV/gatan-postcovid-varfor-satts-livet-pa-paus-for-vissa A...

I have no personal experience, but based on the info people share on social media it's mecobalamin (methylcobalamin). Dosage is rarely mentioned and varies from person to person, but usually seems to be 10 mg (2 ml), injected 1-2 times a week. Many of them supplement folacin (folic acid) too...