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Thanks to a new agreement between PTS and PostNord, it will soon be possible for elderly and disabled people in Sweden to get their mail delivered to their door :thumbup::party: Villkor säkrar god brev- och paketservice i alla delar av landet...

ED as a diagnosis is widely accepted, and there is much less stigma put on pwED compared to pwME. Healthcare providers and people in general are well informed about ED. ED is a psychiatric diagnosis, so I'd say pwED are met with the "regular amount" of mental health discrimination and stigma...

One aspect of the Swedish social insurance system that might be worth adding to the discussion here is the so called guidelines for insurance medicine by Socialstyrelsen/the National Board of Health and Welfare. From them you can learn a lot about how this diagnosis is being viewed in Sweden...

Two great reels from Imani Barbarin (crutches_and_spice), about how newly disabled people will do absolutely anything for a cure. And here's a video clip of Gwyneth Paltrow talking to her doctor about her "wellness routine", that she has apparently been recommended to treat her long covid...

This is massive!! :jawdrop: So good to see this in a newspaper! What an absolute dumpster fire :mad: They say in the article that the project probably won't continue, probably will be cancelled. I desperately hope so! It has already caused so much harm, would be an absolute catastrophe if this...

Yes, ED is another name for burnout ("utbrändhet") in Sweden. Before landing on ED, the name of the diagnosis used to be "utmattningsdepression" (literally "exhaustion depression"). Many pwME got misdiagnosed, even in the absence of depression. I suspect many still are.

Characterization of exhaustion disorder and identification of outcomes that matter to patients: Qualitative content analysis of a Swedish national online survey Elin Lindsäter, Frank Svärdman, Patrik Rosquist, John Wallert, Ekaterina Ivanova, Mats Lekander, Anna Söderholm, Christian Rück...

:broken_heart::heart:

Ida, 45, har varit sjuk sen december 2020: Lever i en liten bubbla https://www.aftonbladet.se/nyheter/a/mQvdmE/ida-45-har-varit-sjuk-sen-december-2020-lever-i-en-liten-bubbla "We have not seen this phenomenon before" :rolleyes::grumpy:

More from the same programme today (video, 11 minutes, in Swedish) https://www.tv4play.se/program/efter-fem/20476849

Yes, before the end of 2023... :rolleyes:

Swedish researcher Petter Brodin said in a TV interview today that a cure for long covid can/will be available later this year(!). The statement is based on a research study that is to begin very soon... :rolleyes: He specifically mentions getting rid of lingering viruses, adjusting the...

Opinion piece by the chairperson of the Swedish covid association. Debatt: Varför ska vi bry oss om covids långvariga konsekvenser? https://www.etc.se/debatt/varfoer-ska-vi-bry-oss-om-covids-laangvariga-konsekvenser ("Why should we care about the long-term consequences of COVID-19?")

Food combinations can sometimes make a difference too. For example, eating oat porridge makes me feel very unwell. However, if I add fat to it (eg nut butter or coconut oil) I can eat it, no symptom exacerbation.

Has this been posted already? I don't think it's new. ER & Urgent Care Considerations for ME/CFS (PDF) https://batemanhornecenter.org/wp-content/uploads/filebase/education/top_resources/ER-and-Urgent-Care-Considerations-for-MECFS-1.19.22-005.pdf...

Members of Riksdagen/the Swedish Parliament held a seminar on ME (and the need for more research, more specialist centers, as well as a national competence center?) earlier this week. Among the speakers were Jonas Bergqvist and Brian Hughes.

Well, many of them are offered POTS meds, and find them very helpful. (Meanwhile, I've been suffering from very severe OI for more than a decade, and I still don't have access to meds, let alone proper medical investigations or even a diagnosis.)

Läkare: Vi kan inte bota postcovid, men vi kan lindra https://www.dn.se/insidan/lakare-vi-kan-inte-bota-postcovid-men-vi-kan-lindra/

(Not ME. About medical gaslighting.) Medicinskt gaslighting – tecken på att läkaren inte tar dig på allvar https://www.mabra.com/medicin/tecken-pa-medicinsk-gaslighting/9212528

Annah Björk: En skugga av sitt gamla jag https://vi.se/artikel/srDkEB1K-a0j2LRwp-1b8c4