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A statement from Region Stockholm. The decision has now been made to terminate the contract for Exhaustion Disorder and Chronic Pain, which includes Bragée ME Center. Förändringar inom vården för smärta, utmattning och ME/CFS...

Thank you so much for this! Now I want to try one too :)

Two articles in the Swedish newspaper DN today, commenting on companies selling expensive gut microbiome self-tests and advice that lack scientific evidence. ME is mentioned. Dyra tester och tveksamma råd: Så tjänar företagen pengar på tarmflora...

Council of Europe, Commissioner of Human rights: 'Nothing to cure: putting an end to so-called “conversion therapies” for LGBTI people' https://www.coe.int/en/web/commissioner/-/nothing-to-cure-putting-an-end-to-so-called-conversion-therapies-for-lgbti-people# Very informative article, worth a...

Opinion piece in the Journal of the Swedish Medical Association. Postcovid: Självläkande komplikation med möjlig bakteriell bakgrund https://lakartidningen.se/opinion/debatt/2023/02/sjalvlakande-komplikation-med-mojlig-bakteriell-bakgrund/ Google Translate, English ("Post-covid: Self-healing...

So far no public comments have been published by Bragée, RME or RME Stockholm. However, @MittEremltage has an informative post about this on their blog today, thank you! Excellent sleuthing, as always :thumbsup: Please click through to the blog for links to source documents etc. Är ME-vården i...

Posts moved from News from Scandinavia Local news from Stockholm, Sweden. According to a news article today, the politicians of Region Stockholm (the local government responsible for healthcare among other things) have decided to terminate the contract for Exhaustion Disorder and Chronic Pain...

Björn and Britt Bragée are publishing an online "pain course" in 7 parts, free to watch on Youtube: https://www.youtube.com/@bjornochbritt (I'm unable to watch this myself at the moment because of PEM, but according to comments on social media it's apparently similar to DNRS?)

Nearly horizontal 95% of the time, sitting maybe 5% of the time? :)

I started doing needlework in bed a couple of months ago, and I've been surprised by how well it has been going :) My hands and arms usually fall asleep very quickly when I'm using my mobile phone or e-reader, but I've actually been able to sew for long-ish stretches of time without...

Could it maybe be a language thing? Here in Sweden the diagnosis is often called 'postviral trötthet', literally 'post-viral tiredness'. (See for example the upcoming webinar with ME specialist Julin and Fedorowski.) I'm not sure if 'postinfektiösa syndrom' is a commonly used umbrella term in...

Fedorowski has had lots of patients with ME over the years, and I've been hearing very good things about him as a clinician from them.

Podcast episode about PEM, well worth a listen :thumbsup: https://natashalipman.substack.com/p/post-exertional-malaise Transcript here: http://natashalipman.com/post-exertional-malaise-podcast-transcript

Läkartidningen/the Journal of the Swedish Medical Association is again organising a webinar for medical professionals on burnout, ME and long covid. (Has been running yearly since 2018, if I remember correctly?) Stressrelaterat utmattningssyndrom, ME/CFS och postcovid Fredag 17 februari 2023...

Great, thank you :) The Swedish Covid Association is the only organisation, as far as I'm aware, that is doing this kind of long covid advocacy/activism work in Sweden. (There are several Swedish long covid Facebook groups as well, but as far as I know none of them are into organised...

You could contact the Swedish Covid Association info@covidforeningen.se, and suggest they do it? Or RME info@rme.nu?

You could contact them yourself? Adding actimetry is a very good suggestion. There is contact info on the KI page, linked above. You can write to them in English.

Their proposal for a national action plan has now been published in full (in Swedish) on their website: https://covidforeningen.se/vart-arbete/nationell-handlingsplan-postcovid/

https://news.ki.se/help-us-to-uncover-the-physical-limitations-of-post-covid Same article in Swedish: https://nyheter.ki.se/hjalp-oss-att-avsloja-de-fysiska-begransningarna-av-postcovid

"Primary Outcome Measures : Post-exercise malaise symptoms of post-COVID subjects and age/sex matched controls in response to different exercise trials. [ Time Frame: Three exercises trials & 48 hours follow-ups of each trial ] The score in DePaul Symptom Questionnaire-Post-Exertional Malaise...