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(Paywalled) Johanna, 49, om att leva med ME – och kampen för att få rätt vård: ”Som en konstig mardröm” https://www.jp.se/2022-12-05/johanna-49-om-att-leva-med-me--och-kampen-for-att-fa-ratt-vard-som-en-konstig-mardrom

Kan S aureus vara etiologiskt agens för ME/CFS och postcovid? https://lakartidningen.se/opinion/debatt/2022/12/kan-s-aureus-vara-etiologiskt-agens-for-me-cfs-och-postcovid/ Google Translate, English ("Can S aureus be an etiologic agent for ME/CFS and postcovid?")

Brilliant! :thumbup: So so good to see how much credit she gives to @MittEremltage as well - really well deserved! :hug:

I have to admit I'm finding some of the comments in this thread confusing. In short, this is about changing unhelpful and harmful power structures. For years Riggare has been putting her words into action—showing that she means what she says by actively doing it herself; as a patient, expert...

Are you commenting on the study or on the word "empowerment"? Riggare has done some really great and important work as an expert patient, as well as for and about expert patients ("spetspatienter") here in Sweden. Her articles are well worth a read. One easy way to get more familiar with her...

Here's an interview with one of the co-authors (in Swedish): Karolinska Institutet: Ny publikation om spetspatienters egenvård- ur deras eget perspektiv https://ki.se/lime/ny-publikation-om-spetspatienters-egenvard-ur-deras-eget-perspektiv

Meeting the Burden of Self-management: Qualitative Study Investigating the Empowering Behaviors of Patients and Informal Caregivers Therese Scott Duncan, Jon Engström, Sara Riggare, Maria Hägglund, Sabine Koch Abstract Background: Patient empowerment is an important concept and a movement...

Again and as always, many many thanks to @MittEremltage for excellent sleuthing and incredibly valuable reporting :thumbup::hug: Latest updates available here: https://mitteremitage.wordpress.com/ https://twitter.com/mitteremitage/ What a ridiculous and infuriating mess, this whole project...

News article about a new Swedish study: Ny undersökning: Två av tre covidsmittade inom vården fick långvariga besvär https://sverigesradio.se/artikel/ny-undersokning-tva-av-tre-covidsmittade-inom-varden-fick-langvariga-besvar Forum thread about the study here.

Swedish news article about the study: Ny undersökning: Två av tre covidsmittade inom vården fick långvariga besvär https://sverigesradio.se/artikel/ny-undersokning-tva-av-tre-covidsmittade-inom-varden-fick-langvariga-besvar

Self-reported symptom severity, general health, and impairment in post-acute phases of COVID-19: retrospective cohort study of Swedish public employees Simon B. Larsson, Gustaf Stukát von Feilitzen, Maria E. Andersson, Per Sikora, Magnus Lindh, Rickard Nordén, Staffan Nilsson & Robert Sigström...

Professorn om post-covidsjuka: De är inte inbillningssjuka https://www.svt.se/nyheter/inrikes/professorn-om-post-covidsjuka-de-ar-inte-inbillningssjuka More here, on the news/Aktuellt (video, 13 minutes, in Swedish)...

Eleonore Léone lider av postcovid: ”Tungt att lyfta ett finger” https://www.svt.se/nyheter/inrikes/eleonore-leone-lider-av-post-covid-tungt-att-lyfta-ett-finger

Sweden: 24 November at 6pm, Instagram Live on long covid by cardiologist dr Marcus Ståhlberg (in Swedish). Organised by Karolinska Institutet, the Swedish Covid Association, and the Pandemic Fund.

"Artur Fedorowski @ArturFedorowski Plasma proteomic profiling in postural orthostatic tachycardia syndrome (POTS) reveals new disease pathways https://pubmed.ncbi.nlm.nih.gov/36414707/ Finally published, many thanks to Madeleine, Hong, Charlotte and Akos for hard work and expertise. POTS is...

Plasma proteomic profiling in postural orthostatic tachycardia syndrome (POTS) reveals new disease pathways Madeleine Johansson, Hong Yan, Charlotte Welinder, Ákos Végvári, Viktor Hamrefors, Magnus Bäck, Richard Sutton & Artur Fedorowski. Abstract Postural orthostatic tachycardia syndrome...

Opinion piece in a local Swedish paper. ME-patienter behöver tas på allvar – nu https://www.lt.se/2022-11-18/me-patienter-behover-tas-pa-allvar--nu

Most people are sticking their head in the sand here as well, just like everywhere else :grumpy:

Ridicilous :grumpy: Thank you so much, @MittEremltage :thumbup:

Here's the press release (in Swedish) https://news.cision.com/se/linkopings-universitet/r/covid-19-aktiverar-flera-slumrande-virus---sarskilt-hos-me-patienter,c3660075