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  1. mango

    News from Scandinavia

    This is about some of the complaints that were filed against Jonas Axelsson and the Amelie Clinic/Ameliekliniken. Written article + a video (3 minutes, in Swedish). Hård Ivo-kritik mot läkaren som massmedicinerade ME-sjuka...
  2. mango

    News from Scandinavia

    Paywalled article about Jessika, this time in a bigger newspaper: Jessika har levt fem år i ett nedsläckt rum https://www.gp.se/livsstil/jessika-har-levt-fem-ar-i-ett-nedslackt-rum.54f0f553-f24c-4e7a-a5bc-e1193ff2b28c
  3. mango

    TACTIC (CBT/ACT for post covid), Buhrman et al

    Dr Lisa Norén from the Swedish Covid Association left a comment on one of Uppsala University's Facebook posts about the study a few weeks ago: @MittEremltage mentions this in her most recent blog post: Ett förtydligande om pågående studier...
  4. mango

    News from Scandinavia

    No, exhaustion disorder ("utmattningssyndrom", used to be "utmattningsdepression", or colloquially "utbrändhet") is a specific diagnosis that only exists in Sweden. It's a psychiatric diagnosis, prolonged work-related stress that has led to exhaustion. It's probably called something like...
  5. mango

    News from Scandinavia

    Not ME. About brain fatigue (brain fog) on Swedish breakfast TV today (7 minutes). Nyhetsmorgon: Så hanterar du hjärntrötthet – hjärnforskarens bästa strategier https://www.tv4play.se/klipp/2fd85287cd70add79471
  6. mango

    News from Scandinavia

    Does anybody here know what happened to dr Jesper Mehlsen's licence to practice medicine? What is the controversy about? I'm unable to try and look it up myself at the moment, but I'm curious to know so I would very much appreciate it if someone would maybe be able to give a short summary...
  7. mango

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    This commission statement refers to people with Autism, ADHD, asthma, auto-immune disease, and chronic illness as a “dire threat to the American people and our way of life”. Establishing the President's Make America Healthy Again Commission...
  8. mango

    News From Jarred Younger / Neuroinflammation, Pain, and Fatigue Laboratory at UAB, From Aug 2020

    "050 - Why new medication might not help chronic pain A short discussion on the use of FDA-approved medication JOURNAVX (suzetrigine) for chronic pain."
  9. mango

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    Eric Topol "What's happening with the Covid nasal vaccine programs? And why are they in jeopardy?" https://erictopol.substack.com/p/a-covid-nasal-vaccine-update
  10. mango

    News from Scandinavia

    Summary in Swedish, published by the Swedish Covid Association: NordForsk publicerar viktig rapport om postcovid https://covidforeningen.se/nordforsk-publicerar-viktig-rapport-om-postcovid/
  11. mango

    News from Scandinavia

    News segment on Swedish radio (2 minutes). Andreas tre döttrar har postcovid – regeringen vill förbättra vården https://www.sverigesradio.se/artikel/andreas-tre-dottrar-har-postcovid-regeringen-vill-forbattra-varden
  12. mango

    News from Scandinavia

    Yeah, sure. Blame the patient organisations... :rolleyes: That's not what reality looks like, though. They weaponize anything and everything against us, no matter what the advocacy groups do or don't do. Even things like asking for one's legal patient rights to be respected (eg the right to...
  13. mango

    News from Scandinavia

    They weaponize the "no abnormalities" argument, though. It's not about whether the statement is true or not -- it's about how it is being used against us in bad faith, including to deny us even the most basic sort of medical care or tests. For example, for me personally it meant that it took...
  14. mango

    News from Scandinavia

    The Swedish Covid Association recently published a guide/checklist for people who are considering taking part in a research study. Know your rights + some good questions to ask before you decide. https://covidforeningen.se/checklista-delta-i-studie/
  15. mango

    News from Scandinavia

    The Swedish Covid Association recently published a guide for researchers, on how to design research studies for people with PEM. It has been fact checked by a senior fellow/medical doctor. https://covidforeningen.se/till-dig-som-forskare/
  16. mango

    News from Scandinavia

    @MittEremltage shares her thoughts on today's vile opinion piece: Ett ideologiskt ställningstagande snarare än okunskap https://mitteremitage.wordpress.com/2025/02/07/ett-ideologiskt-stallningstagande-snarare-an-okunskap/
  17. mango

    News from Scandinavia

    ST-tidningen has published a disgusting opinion piece/comment on the article about Jessika today, by an anonymous GP who falsely frames ME as psychiatric :wtf::mad::sick: Can be upsetting/triggering for those of us who have been subjected to medical gaslighting and other kinds of medical harm...
  18. mango

    Sweden: Socialstyrelsen and SBU to produce new evidence reviews for post covid

    @MittEremltage shares her thoughts on the new projects on her blog today: Bakläxa eller belöning? https://mitteremitage.wordpress.com/2025/02/05/baklaxa-eller-beloning/
  19. mango

    Sweden: Socialstyrelsen's new national guidelines for "Postcovid and other related conditions and syndromes" including ME/CFS

    Today the Swedish government announced two new projects related to the current guidelines: The National Board of Health and Welfare (Socialstyrelsen) and the Swedish Agency for Health Technology Assessment and Assessment of Social Services (SBU) are being assigned "to produce knowledge reviews...
  20. mango

    Sweden: Socialstyrelsen and SBU to produce new evidence reviews for post covid

    What does this mean? The problematic clinical guidelines from August 2024 include ME/CFS too. Has the government listened to the criticism only regarding post-covid, but not ME/CFS?
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