Search results

Press release by the Swedish Covid Association: Regeringen ger Socialstyrelsen bakläxa https://covidforeningen.se/regeringen-ger-socialstyrelsen-baklaxa/ The Swedish Covid Association has shared the news on their Facebook page too. (Edited to change the translation of the word "bakläxa" from...

Uppdrag till Socialstyrelsen att kartlägga och analysera behandlingen av barn med post-covid https://www.regeringen.se/regeringsuppdrag/2025/02/uppdrag-till-socialstyrelsen-att-kartlagga-och-analysera-behandlingen-av-barn-med-post-covid/

Uppdrag att ta fram kunskapsöversikter om postcovid https://www.regeringen.se/regeringsuppdrag/2025/02/uppdrag-att-ta-fram-kunskapsoversikter-om-postcovid/

In August 2024 the National Board of Health and Welfare in Sweden (Socialstyrelsen), published national guidelines for post covid, post influenza, post sepsis, post intensive care syndrome, ME/CFS and PANS/PANDAS. The guidelines are really unhelpful and has been heavily criticised, most of all...

Marie, 49, blev sjuk i covid 2021 – är inte frisk än https://www.aftonbladet.se/nyheter/a/VzXbbp/marie-ewerz-blev-sjuk-i-covid-2021-ar-inte-frisk-an

I'm sorry it's been so difficult for you to find information and help. I'd encourage you to keep looking though, because dysautonomia peer support groups that are open to and relevant to other forms of dysautonomia besides POTS definitely exist. I'm personally not active in any English speaking...

Opinion piece: ”Sverige är inte redo för nästa viruspandemi” https://www.dn.se/debatt/sverige-ar-inte-redo-for-nasta-viruspandemi/

21-åriga Victorias kamp mot postcovid – fem år efter första svenska coronafallet https://www.svt.se/nyheter/lokalt/vast/21-ariga-victorias-kamp-mot-postcovid-fem-ar-efter-forsta-svenska-coronafallet

:(:heart:

Article in a local newspaper about a severely ill pwME, and about her not getting the help she needs at home, not even with food or basic hygiene. ME-sjuka Jessika: ”Jag ligger här och sakta dör"...

Opinion piece by the Swedish Covid Association in a newspaper, about their complaint to the Parliamentary Ombudsmen against the National Board of Health and Welfare. :thumbup: Thank you! For those who might be new to this or haven't been following along, the "knowledge support" this complaint...

Please support this initiative proposed by European Union citizens: Ban on conversion practices in the European Union Read more and sign the petition here: https://eci.ec.europa.eu/043/public/#/screen/home "Objectives We call on the European Commission to propose a binding legal ban on...

FDA purges material on clinical trial diversity from its site, showing stakes of Trump DEI ban The scrubbing could affect the ways researchers and companies test drugs and medical devices https://www.statnews.com/2025/01/23/fda-purges-pages-clinical-trial-diversity-after-trump-dei-ban/...

Paywalled article in one of Sweden's largest newspapers. Forskare: ”ME och postcovid samma sak” https://www.svd.se/a/eMXwxl/maria-fortfarande-sjuk-men-snart-kan-gatan-om-postcovid-fa-svar

(Not a recommendation, obviously. I'm sharing only for informational purposes.) TACTIC is a study aiming to develop a cost-effective internet-based treatment for post covid, based on CBT and ACT. Monica Buhrman, Uppsala University, Sweden. Currently recruiting (January 2025)...

I ticked "Other changes is sleep" for complete day-night sleep reversal. For milder pem it can sometimes be more of a delayed sleep–wake phase. (It's not just that same night, but usually for the duration of the PEM.)

AIM ImmunoTech Highlights New Article Finding Links Between COVID-19 and ME/CFS https://finance.yahoo.com/news/aim-immunotech-highlights-article-finding-133000780.html?guccounter=1

Yes, it has been the case for a long time :( He has been involved in ME research and clinical care for a long time too :grumpy:

Do also check out @MittEremltage's blog, who is digging into this and trying to connect the dots. Något är fishy https://mitteremitage.wordpress.com/2025/01/21/nagot-ar-fishy/ I recently made a post on another thread recently, re: RME Stockholm and Lindsäter attending a meeting with Region...

https://www.su.se/forskning/forskningsprojekt/fatigue-kohorten