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Trötthetsstudien https://www.akademisktprimarvardscentrum.se/Forskning-innovation/Forskningsstudie-Ihallande-Trotthet/

About the research team (in Swedish) Om forskargruppen https://www.akademisktprimarvardscentrum.se/Forskning-innovation/Forskningsstudie-Ihallande-Trotthet/Om-forskargruppen/ Elin Lindsäter (member of the Oslo CF Consortium) Jacob Andersson Emad Hans Knoop (member of the Oslo CF Consortium)...

I think this is the pilot? https://clinicaltrials.gov/study/NCT06341751 https://www.s4me.info/threads/sweden-psychological-treatment-for-severe-fatigue-a-feasibility-study-linds%C3%A4ter-et-al.39238/

Characterization, Treatment, and Long-term Follow-up of Fatigued Patients in Primary Care (iFAS) Elin Lindsäter et al, Karolinska Institutet, Stockholm, Sweden https://clinicaltrials.gov/study/NCT06786832 Study Start (Estimated): 2025-01 Primary Completion (Estimated): 2027-06 Enrollment...

Forum thread on Maroti's new study (not yet recruiting): ISTDP for Patients with Treatment Resistance PPS https://www.s4me.info/threads/istdp-for-patients-with-treatment-resistance-pps-maroti-et-al.42259/

Individual Intensive Short Term Psychodynamic Psychotherapy for Patients with Treatment Resistance Persistent Physical Symptoms ISTDP for Patients with Treatment Resistance PPS https://clinicaltrials.gov/study/NCT06682104 Daniel Maroti, Stockholm University, Sweden "Study Overview Brief...

Fairly long and sympathetic article about the difficulties of chronically ill people who are wrongly denied ill health retirement. Kristina en av tusentals sjukskrivna som tvingas leva på bidrag: ”Förnedrande”...

"Here is a new pilot clinical trial for managing chronic low back pain. You can find the full paper at: https://www.mdpi.com/2077-0383/13/24/7601 Jarred Younger" 048 - Treating chronic low back pain with noninvasive vagus nerve stimulation

RME Stockholm has written about the meeting in a post on their Facebook page today. What I find the most interesting about this is that RME Stockholm are listing all the people who attended the meeting, but they have left out Elin Lindsäter's name(!). Why are RME Stockholm trying to hide this...

The chairperson of RME and the chairperson of FSI are proudly and smilingly posing for a selfie together with Oslo CF Network member/BPS proponent/BPS researcher Elin Lindsäter and her collaborators, in a picture published by FSI after a meeting with Region Stockholm's Health and Medical Board...

News segment on the radio (in Swedish, 2 minutes) and short written article about the Swedish Covid Association's complaint to the Parliamentary Ombudsmen against the National Board of Health and Welfare. Svenska Covidföreningen JO-anmäler Socialstyrelsen...

(Not specifically about ME, but relevant to pwME.) This petition is a protest against the Swedish government's proposal to reduce the high-cost protection for medication, adressed to the Minister for Health Care Acko Ankarberg Johansson. Försämra inte högkostnadsskyddet för läkemedel...

News article in the journal of the Swedish Medical Association, about the Swedish Covid Association's complaint to the Parliamentary Ombudsmen against the National Board of Health and Welfare: Socialstyrelsen JO-anmäls för brister i kunskapsstödet om postcovid...

What a disappointing and avoidant reply from RME :( Thank you so much for trying, @MittEremltage.

The Swedish Covid Association has published a hugely useful and really important document (21 pages, .pdf) about patient rights, which also incluces some tips about how to best prepare yourself before an appointment: Dina rättigheter som patient...

@MittEremltage comments on the Swedish Covid Association's complaint to the Parliamentary Ombudsmen (JO): Om Svenska Covidföreningens JO-anmälan av Socialstyrelsen https://mitteremitage.wordpress.com/2025/01/14/om-svenska-covidforeningens-jo-anmalan-av-socialstyrelsen/

The Covid Association shares more details about their complaint to the the Parliamentary Ombudsmen (JO). The complaint -- which is about the national clinical guidelines for long covid and other post infectious conditions, which includes ME -- is also available to download in full as a pdf...

I hope you all have clicked through to read @MittEremltage's open letter to RME by now, it's really worth a read. RME has ignored the open letter so far, and has also closed their Facebook post for comments. @MittEremltage has published an informative follow-up piece to her excellent open...

The well-known and admired Swedish journalist and writer Agnes Arpi recommends Maran in her latest opinion piece in Altinget today :thumbsup: "I can recommend the podcast Maran, season 2, for a multifaceted critical perspective on the knowledge support that will govern healthcare in the...

Agnes Arpi recommends season 2 of the podcast Maran, by @MittEremltage. (I too very much recommend it!) The podcast is in Swedish but all the transcripts are available in full on the blog, so it's easily translated into English through deepl.com or Google Translate etc. Forum thread here...