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It is possible, but since even complete ablation of the pituitary does not usually produce a symptom pattern suggestive of ME and hypothalamic disease also produces quite different pictures I think these findings are pretty hard to interpret.

That site is total gibberish. Something that maybe the discussion on S4ME has not considered too much is that, maybe with the retirement of most of the PACE authors, ME/CFS multidisciplinary services now look as if they are run by people who have no clue at all - even about BPS research...

That really says it all. Physical medicine was dead as a concept in 1975.

They should read what that guy said in the NICE appendix: don't confuse end with means. The end may well be to do more normal activities. That does not mean that the means is to do more normal activities. If you have a leg fracture the end is to walk. You don't get there by walking on a broken leg.

Does anyone understand what is going on here? ELFT were the people who put out a ridiculous video with Rona Moss-Morris on CBT etc. that I think I quoted in my NICE report. It sounds as if they have withdrawn from ME as not part of their core business?

Autoimmunity to hypothalamus or pituitary might be linked to immune response genes like MHC but is not particularly likely to link to genes actually involved in the thyroid (or pituitary).

It has taken me a while to form an opinion on this. I have had some input and I Amin a position to say: My own assessment and that of a knowledgeable colleague suggest that the data are probably not enough to form any useful interpretation. Immunohistochemistry is so subject to artifactual...

Who says that your model has anything to do with the ability to empathise? In my experience those of my colleagues who witter on about psychological and social factors are the least empathising. They think they know the answers rather than being humble with the patient and admitting there are...

It may be relatively hard to find someone completely recovered interested in joining - unless someone with a pet theory of how they recovered. That pet theory is quite unlikely to be about exercise though. The absurdity of the 'inclusivity' may be all the more obvious within. The coincidence is...

That seems an ill-informed comment on various sounds. The whole piece seems scattershot to me. A lot of numbers and not much nuance.

I agree that this recovery business makes a mockery of the whole exercise. Would one have someone who had recovered with homeopathy on a homeopathy review? Or someone who had recovered without homeopathy?

Pure speculation but my understanding is that Jo Daniels was penalised in some way for tweeting about CBT a while back. I wonder if the problem is that this has meant that the sensible reformers have had more scope to tidy up some further loose ends in the guidelines and that this has proved...

I think the change in leadership has already been organised. Fiona Godlee is stepping down. She made a remark about the BMJ moving into some exciting new phase. As to what that will bring who knows but it doesn't sound too promising to me.

Or Putin and Medvedev?!!

I think the only rational interpretation is that the final report will stick to the draft. There may be a minority report from those who stepped down but it might be hard for them to produce something that doesn't look sour grapes and isn't torn to pieces.

I think @chrisb is right in his history. When I started medicine in 1970 we worked on the basis that we thought we had a scientific understanding of what was wrong with people, at least some of the time, and we guessed what was likely to help most based on the scientific analysis. We did that...

I had thought there were 4 patient reps, including Charles.

And Garner's comment is so true: “What is serious is that those resigning are some of the most respected service providers for ME/CFS services in the country. This can only mean that the disagreement is fundamental to care of people with ME/CFS, in terms of what works and about the balance...

Yes, I like that.

I had a look at the BMJ news piece published today. It is probably best for me not to write a rapid response although I am not actually aware of agreeing to any confidentiality when I agreed to be an expert witness. The author of the news piece notes: It is unclear, however, how the evidence...