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  1. Jonathan Edwards

    The pervasive problem with placebos in psychology: Why active control groups are not sufficient..., 2013, Boot et al.

    This lays out the problem pretty well. The suggestions for alternative designs make sense but are maybe bit pedestrian. There is a suggestion that maybe somehow expectation bias could be 'factored out'y measuring it. That seems to me unlikely to be realistic. The whole problem with expectation...
  2. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Ah, yes, that would be a different issue and a reason for people to whisper behind his back. But attacking the system and others' treasured dogmas is called standing up for what you believe in. Anyone with any backbone does that with pride and takes the backlash on the chin - I have been at it...
  3. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    From my perspective as someone in a similar job to Garner I really don't recognise this. Colleagues might have judged him for being careless enough to get infected - which in his case was unlikely to be from seeing sick people in A/E. But the medics I know with LongCovid are given huge sympathy...
  4. Jonathan Edwards

    Article in Guardian: I rested my way to recovery from ‘long-haul Covid’. I urge others to do the same | Fiona Lowenstein

    I would be happy to take this article a little tongue in cheek: So that's the nutty professor's N=Me This is my N=Me Nah-nah-na-nah-nah! Two can play at that game. And since you did it first you can't complain.
  5. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Aren't people confusing empathy with sympathy. Empathy is the ability to understand and share the feelings of another. Really don't understand Garner's feelings. If I had Covid and remained ill, as a physician well familiar with the concept of post viral fatigue I would feel relieved that I had...
  6. Jonathan Edwards

    Nature - Chronic post-COVID-19 syndrome and chronic fatigue syndrome: Is there a role for extracorporeal apheresis?, 2021, Bornstein et al

    Simple answer to the title: No. Apheresis has an effect for a week or so - what's the point?
  7. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I think Garner is LSTM - Liverpool School of Tropical Medicine - without the hygiene!
  8. Jonathan Edwards

    Are there any good studies proving that food sensitivities are a real thing?

    The study you quote looks quite good. From what I have read nobody has been able to demonstrate Kwok's MSG effect either, despite trying. If reasonable studies show nothing then maybe it isn't there?
  9. Jonathan Edwards

    UK: NICE Guideline: Shared decision making, published June 2021

    I think that depends on what sort of examples are considered. Shared risk taking is something doctors and patients have been doing in discussion for years in rheumatology, where most drugs are risky. Much of the time that is through explaining risks and the patient coming to a decision. For...
  10. Jonathan Edwards

    Availability and usefulness of peripheral nervous system tests

    In general I have a rule not to advise individual people on their health problems but I try not to follow that just for the sake of it. A general comment that comes to my mind is that swelling following stimulus is not a feature of allodynia, but of some sort of tissue sensitivity. Allodynia...
  11. Jonathan Edwards

    UK: NICE Guideline: Shared decision making, published June 2021

    I realise that this situation exists. Interestingly, I don't think I ever found myself in it except when NICE refused to let me use the drug I had proven to work! And that wasn't my decision. And for one or two patients I inherited who had become hooked on regular steroid injections that were...
  12. Jonathan Edwards

    Availability and usefulness of peripheral nervous system tests

    (I am a professor of medicine.) I don't think electrophysiological tests are any use for the face. There are no electrophysiological abnormalities in ME/CFS or fibromyalgia that I am aware of. Electrical tests on limbs are chiefly of use to excuse other things - and their use is quite limited...
  13. Jonathan Edwards

    Massive Science article: We must reckon with our ableism if we want healthcare to work for people

    If you want to be openly derogatory about all doctors that's fine by me but as a doctor it doesn't ring true. Most doctors would like to do their best for people but they get fed up if people have unreasonable expectations associated with diagnoses that don't mean anything useful. Surely the...
  14. Jonathan Edwards

    UK: NICE Guideline: Shared decision making, published June 2021

    Indeed. As far as I was concerned as a doctor all the decisions were made by the patient. I was just there to explain what was available. Why should patients have to share their decisions with health workers?
  15. Jonathan Edwards

    UK: NICE Guideline: Shared decision making, published June 2021

    I am afraid this looks like window dressing to me. I have this awful vision of an ignorant health care worker offering a useless treatment explaining at length how they are going to be terribly nice and friendly and share the decision with me as long as I am terribly nice and friendly to them...
  16. Jonathan Edwards

    Massive Science article: We must reckon with our ableism if we want healthcare to work for people

    The irony is that 'fibromyalgia' really means, in medical language 'whingeing about pain when there is nothing really wrong, oops, I mean it's all biopsychosocial'. Unexplained pain is at least just unexplained pain. The more a doctor believe in fibromyalgia the more they don't believe it's...
  17. Jonathan Edwards

    Massive Science article: We must reckon with our ableism if we want healthcare to work for people

    'I was told that they don’t treat patients with fibromyalgia, like me, regardless of what they come in for.' I can guarantee that is not actually what was said. Does anyone actually believe those words were used?
  18. Jonathan Edwards

    Massive Science article: We must reckon with our ableism if we want healthcare to work for people

    I am of course very well aware of the problem of not being believed. But just as members read this article from the perspective of being the patient I read it from experience of being on the other end as well. (Yes, I too have been the unbelieved patient.) Everything I see in this article...
  19. Jonathan Edwards

    Massive Science article: We must reckon with our ableism if we want healthcare to work for people

    I see this from the point of view of the doctor. 'Fibromyalgia is a term used 100 times more frequently by some physicians than others. Prevalence rates vary from 8% down to 0.05%. Which basically means the term is meaningless. ME/CFS has a specific meaning and is clearly useful, even if there...
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