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  1. Jonathan Edwards

    NICE ME/CFS draft guideline - publication dates and delays 2020

    I don't think NICE is going to change its advice. If anything I would suspect that the credibility of the BPS crowd wears thinner month by month and everyone on the NICE committee is aware of that whatever their standpoint. I doubt there is any strategy on the part of the BOPS people here. It...
  2. Jonathan Edwards

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    People can certainly get severely deconditioned but I don't know of any evidence that they need more than following their natural body signals as they get back to doing things.
  3. Jonathan Edwards

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    Not sure I follow. There isn't a particular treatment for people who deconditioned other than advising them that in the long term exercise is healthy so worth doing when they are up to it. If they are not convinced they are deconditioned then it may be uphill giving advice!
  4. Jonathan Edwards

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    I am not sure why. I don't see GET as a solution to anything. If people are able to do more and want to they can get on and do it. They don't need a therapist. If they find they cannot do it then either they shouldn't try, or if it is due to mistaken beliefs then I would have thought GET would...
  5. Jonathan Edwards

    Revising a diagnosis of functional neurological disorder—a case report, 2020, Berry and Weithoff

    I have a good friend whose mother was in the terrifying situation of being misdiagnosed when she really had PSP. PSP is terrifying enough in itself in that it alters thoughts in such a way that the sufferer is likely to have great trouble establishing insight into their own state anyway. Her...
  6. Jonathan Edwards

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    It might seem it should be so. But what is the reality? The problem of GET stems back to beliefs in physiotherapy. The awful Cochrane review is the way it is because it was written by an evangelical physiotherapist who if I remember rightly wrote on the fly leaf of her thesis how much she wanted...
  7. Jonathan Edwards

    Which exercise & behavioural interventions show most promise for treating fatigue in multiple sclerosis? A network meta-analysis, 2021, Harrison et al

    Unless we are misunderstanding their misunderstanding of their misunderstanding. Maybe they understand only too well - but don't understand how silly what they write looks.
  8. Jonathan Edwards

    Genome-wide association study identifies RNF123 locus as associated with chronic widespread musculoskeletal pain, Md Shafiqur Rahman, et al, 2020

    No. I imagine they will have to do a study focusing on these markers with a better characterised cohort.
  9. Jonathan Edwards

    BPS attempts at psychologizing Long Covid

    The article is pretty empty of anything more than the doubtful headline. I cannot see why lack of research is the reason why people are turned away from A/E. The article contains no analysis.
  10. Jonathan Edwards

    Which exercise & behavioural interventions show most promise for treating fatigue in multiple sclerosis? A network meta-analysis, 2021, Harrison et al

    Nothing like spelling out your stupidity in your paper. Like 'no need to take high winds into account in judging the reliability of materials for tall buildings in the Caribbean because high winds are inherent to the Caribbean'. Methinks they do protest too much again.
  11. Jonathan Edwards

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    Yes but with trials capable of providing reliable information, not with try it and see treatment judged on the basis of 'what seems to be working'. So, surely, these critics should be told firmly that you don't just treat people because you want to have something to do. If we have no reason to...
  12. Jonathan Edwards

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    Yes, but that is the problem isn't it? You would agree that nurses can take people to a shower and have to most of the time since physios work an eight hour day. The whole multidisciplinary concept needs binning. And as far as I know there is nothing we know about posture worth teaching and I...
  13. Jonathan Edwards

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    But is this so? I have been in hospital and needed to get on my feet again and did fine with the arm of a nurse or my wife. You do not need to get proficient again to shower unless you have a stroke or lost the use of a limb in an accident. I doubt there is any evidence that respiratory physios...
  14. Jonathan Edwards

    Guardian: Long Covid is very far from ‘all in the mind’ – but psychology can still help us treat it - by Carmine M Pariante, April 2021

    I have just been looking over the draft for my back-burnered book on PACE written about 2 years ago. I was explaining Trish's rhyme about cardigans: Psychotherapists were less formally dressed but the mental image was of a pleasant young woman with perhaps a powder blue cardigan, maybe a loose...
  15. Jonathan Edwards

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    I agree that people are likely to be helped by advice in terms of past experience for people with ME and Long Covid being that trying to make yourself better by exercising can run into serious trouble. But that is advice that any informed health care professional (or anyone else) can give...
  16. Jonathan Edwards

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    I realise that your intentions are good but the whole idea of having a scientific forum here is to try to pin down a decent evidence base. Trudie Chalder and her friends and osteopaths and homeopaths and naturopaths will say exactly the same thing - that people make progress using their...
  17. Jonathan Edwards

    NIH: Decoding the Mysteries of Postural Orthostatic Tachycardia Syndrome

    I suspect that depends entirely on how some 'Delphic' group of 'experts' likes to define it. For me this is the problem with the ICC definition of ME. It includes all sorts of stuff made up by 'experts' with no actual evidence for linking things together.
  18. Jonathan Edwards

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    Maybe but what has that got to do with 'safety recommendations for rehabilitation'. If athletes want to train that is not rehabilitation. It is training to do sport. And even there, how does any physio or trainer know how to advise beyond the simple message you have just put down. And in fact...
  19. Jonathan Edwards

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    I agree but we need to get away from the culture that assumes that therapist-delivered treatments can just be assumed to be useful - somehow or other as long as you are careful. Therapists, just like doctors, need to learn to say that they do not think that there is help to be given in that way...
  20. Jonathan Edwards

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    It seems to recognise that there is a problem but why issue safety recommendation for rehabilitation rather than say we have no reason at present to recommend any sort of rehabilitation. Maybe physiotherapists have nothing to offer people with this sort of post-viral illness - period. In very...
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