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This article seems to encapsulate the unhelpful beliefs in the physio and sorts medicine world that the NICE guideline made some progress in countering - although not enough. I would like to see David Strain repudiate this sort of thing. It is exactly like the behaviour of some of the...

I still don't get that. The problem with the service and the working conditions is the gross underfunding, which is compounded by the huge cost of cost-cutting. It is perfectly possible to provide an excellent service that the public can afford as long as the funding is realistic. I agree that...

I think a lot of work needs to be done to get physios as a whole to see the needed shift. Hopefully PhysiosforME can make headway. This statement seems unhelpful. Why was the process 'understandably' fraught? It was fraught because certain people were holding on to vested interests and didn't...

I don't follow that. Why would provider interests be relevant to deciding what is useful healthcare?

To me the key point is that if clots were big enough to explain any of the features of ME they would have been found by now. I also think that considering that a lot of people with severe ME are bed bound if there was an issue with clotting it would have come to light.

Yes, I think for all hypotheses like this we need to stand back and ask if it fits in any way with what we already know. There are a number of micro-clotting as well as macro-clotting diseases. They include sickle cell disease, TTP, anti-phospholipid syndrome, polycythaemia rubra vera and so...

Do you know where this is from @Suffolkres ? I agree that there are problems with information like this. Maybe now is the time to try to bring some sense into information for ME.

DNA (PCR) tests and immunology tests are very specific because they use negative controls to ensure you are identifying a particular organism. Microscopy is useful as a screen to see if there is anything there but youth need a specific test to tell if it means anything. Dark field is the...

It reads like Lynne Turner-Stokes.

I looked again at the RCs statement today and realised that it is more petulant whining than defiant denial. I think certain individuals continued to feel that some sort of stand had to be made but all we are really left with is embarrassingly poor arguments about evidence and a feeble attempt...

From what I have seen of the literature and comments recently this dark field technique sounds as if it may be a scam. Finding things that look like spiral organisms under dark field is likely to be pretty unreliable I think. Nowadays things are done with the specific controls provided by...

I think the NHS England rep at RT was Celia Ingham-Clark who is a surgeon by training. Presumably the author of the quoted comment above is a mental health professional. They say they are not familiar with physical health guidelines. They also say they have no interests in ME/CFS. That may be a...

Probably yes, either.

Per Julin has published with Jonas Blomberg which suggests a serious biomedical interest.

I think the basic issue here is that there is a compromise between making the most rational assessment you can and trying to protect the process from cherry picking. NICE have predetermined policies for the latter, which is good in many ways, although it will lead to blunted decision-making...

It may have been well intentioned but it might be more honest to just say 'I don't know'.

Fairy nuff.

I keep wondering if I have been duped into being overcritical by patient activists. And then I see the garbage produced by the defenders of GET. I stop wondering. That's almost good enough to tweet.

Harm needs to be proved by objective tests. I would like to see someone admit to having made that statement! Harm is almost universally established as likely on the basis of otherwise unexplained correlations at a statistical level. What objective tests show that smoking causes lung cancer?

My response to that is that it doesn't really mean anything, just as biopsychosocial doesn't really mean anything. The intention is the same I think - to evade.