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Indeed. There is a major issue here. Interesting that 'it can't be seen'. And, whilst there are various questions these days about the Zimbardo prison experiment, that and other experiments that example what happens only with power distortion one could say are at a minimum firmly believed...

And taking the funding that follows them from having been siloed into said psychosomatic kingdoms (via CCG and gp guidelines and priming I suspect ) to put it hopefully closer to where it always should have been yes some of these might have rare diseases or ones not discovered until recently-...

No its - and this is ironic ‘lazy diagnoser diseases’ when they admit the criteria they’ve been encouraging are there many chronic including serious diseases that don’t present with disabling fatigue? I mean even PEM makes sense when you think the defining feature is UNTREATED and then...

Wow. Nice to see a few of these obvious issues flagged and outing that MUS has been used to lump and dump. And probably to just quietly remove care for certain patients (if it’s not a red flag and we guess it’s chronic no healthcare) but also that this has then been used to change what...

i haven’t read in depth but noting you bring in ME/CFS to this just flags the other issue: ‘calibrated to melanopsin excitation’ is likely to have both individual differences and within person differences (bad day good day etc) was it calibrated but to the eponymous ‘normal person’ (it’s...

Here’s the issue with clinics not even having been changed to new guidelines Or is it based on funding limitations the most we can expect is a short course with no letters sent to make pacing actually more possible why is ME not just getting a ‘hiw were people at 3yrs’ vs other proper...

And you’ve just reminded me of the whole ‘frames of reference issue’ that the MS paper @Hutan linked to earlier on in this thread lists. using subjective measures from exhausted people made more exhausted by having to fill in a questionnaire not designed to be unumbigious and easy is a real...

Sounds also like you mightn't fancy putting either (what they actually want to do, or what they should be doing) down in writing. The resource question then comes in about whether what is 100% vs 'this is all we can offer' has to be considered, but obviously that will become easier once...

almost everyone who can do any marching has been told and believes, somewhere in between where it comes to actually doing it and they think of the catches and what they might be doing instead, that we could really if we were that bothered - and after all, they think we don't have much on...

Indeed - those first years would be interesting to know. But as long as, as per Nice, they are only using the longer years as the measure of if it’s working (and clinics weee told people would get to submit whatever ie no ‘they are a drop out’ fudge) then I think it would transform treatment the...

Interesting it also makes me think given how many assumed paradigms and truisms that medicine happily based things on like a foundation have turned out to have no science (just be values based on upbringing and mother knows best this is his one behaves) or the old ‘famous claimed experiment’...

Indeed. I think it needs to be 2 and 3yrs for these however because If you can get reduced hours quickly enough That might result in you not ended up so ill you never work again long term but if they focus on anything under 2yrs you can imagine people getting bullied into not being helped to...

I hope that they begin getting called out for thinking they can hide behind using that old chestnut even when it is a lie.

It's BS - if it was lack of resources then 2.5yrs in they would 'only be able to provide 50% of what is needed' (or some other figure, and that would show either in numbers of patients or what they can offer to them) No resource issue dictates you must enforce GET programmes and BS cfs-CBT onto...

:hug::hug:

JUst a thought. One note Katie makes is that BACME's literature, specifically this 'guideline' have not been peer reviewed. How does peer review work? Could eg someone from Workwell, someone from @PhysiosforME , David Putrino etc be asked for their review on this, and then maybe their other...

It’s relying on the Heins eg al (2013) paper which includes Knoop and has the charts showing perceived activity increased in certain groups but objective didn’t

Because it’s one thing talking drug treatment in medicine and another in psychiatry- where the history is not pretty of things like chemical coshes, ECT, lobotomy So it’s more nuanced than that what they. Need to ask for

No worries at all!:)

I've just noticed the title too: "many mental health conditions have bodily triggers" it seems at best incredibly dualist wording. and given the 'finding': that it turns out ME/CFS always was a biomedical health condition, and has physical symptoms and isn't a mental health condition it's...