Search results

Has anyone already posted this speech from Baroness Findlay of Llandlaff in the debate on 7th Dec 2021? Baroness Finlay of Llandaff - Health and Care Act 2022 contributions (parallelparliament.co.uk) If you search on the term CFS then it takes to the section I've just read through. And there...

It isn't even doing a focus group. It is pretending to have patient input. Then coming up with a pretence that apparently only those who agreed and nodded were worthy of being counted as 'constructive' Weirdest process I've ever seen. And I've run focus groups and surveys and the like. I'm...

As long as it works both ways hey. Can someone get word to Monica that abuse / abusive particularly does, and always have for any laypersons included suggesting to those who might be that way inclined that 'hysterical woman' accusations and words specifically including and 'in the spirit of'...

Good bit of priming there from Sarah Tyson.... but confusing given I thought she was the one who became abusive / name-calling as a bit of a distraction from the questions she I guess didn't want to have noticed or asked about her research ? Is that not classic DARVO (also a form of abuse?) to...

:thumbup:

That's interesting that the Octopus trial is at 14.25 Its something that cropped up on my social media a while ago, is for MS, and is basically from what I can see a way of speeding up testing of multiple treatments. The following page summarises it best: Octopus | MS Society It seems to be...

I'm also intrigued to pick out of the quote from here, and look up the following elements in more detail (my adding of numbers and lines and my bolding): "1. first by asking the optional qualitative question “What is the most important thing you what your health-care provider to know today”...

THe second, which perhaps might also eventually deserve it's own page (and to see if there are any other similar set-ups doing this, including for other conditions) is the talk about their centre having set up a 'Learning Health System' model:

Without leading the witness or copy-pasting too much of this, I would like to encourage people to give this one a read from the Background section down. There are two really important and fascinating pertinent aspects I'm fishing out here as conversations, and in order to allow for comments to...

This thread has been split from UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023 ********* Just stumbled across this: Obtaining Patient Priorities in a Multiple Sclerosis Comprehensive Care Center: Beyond Patient-Reported Outcomes -...

I've just realised (having looked up the trustees who are generally 'business' type experience like media, investment banking, law) that this is the list of advisors for the board of the Charlie Waller institute: Advisory Groups (charliewaller.org) There seem to be a few of these big trust...

I agree. It was a bit of a weird crowbar, where I'm not sure before they tried to shove things that weren't under psychiatry before into a new term 'mental health' (like alzheimers wouldn't have been there before, autism wasn't) that you are talking very tenuous ideas of 'because they have...

OK here is one for discussion. And it is important. There are so many of these articles where the main body of text makes sense and then the conclusion ends up seeming like a switch and bait that would embed things even more so. I'd love people's input on this, but I think in the UK there is...

I have just read this again. Does it not underline the issue with BPS and rehab/physio these same people insisting on not using objective measures - and yet ... any time the answer is something they didn't like from the patient it is being dismissed as 'they just weren't thinking right'...

Nope, look at your quote and it wasn't me. And then read what I did actually write in response to that and the discussion of it. I'd be interested to see what you think? I didn't point it out at first because I'm sure I've done it where I've mixed up a name or something, and I thought it...

I'm not sure - the quote you've included is a direct answer to the question you asked me, which I'd read as 'did this sound familiar to you as a description of PEM?' and no it doesn't to me, it might to others and that's the fun of PEM but I underlined the sort of immune system reaction feeling...

well he's blown his chance then even if he really believes this. He has let himself get persuaded, or maybe was already there himself, but why take lots of research findings that were of the format where small samples did work and then blow them by allowing them to reported under a framework...

this

and importantly these days is how it is interpreted as 'to be treated' by even nice GPs has been influenced by certain pushes based on propaganda propped up by non-science and inferences. I agree that I'm not sure they are taught to spend time differentiating someone looking 'done in' and are...

Agree, that it is interesting to hear the history and how it might like many other things have been something serious back then, but if it is an issue now in some areas then it does need to be being dealt with Absolutely agree that it has come from the BPS push to capture vocab, and they...