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    Review Understanding Functional Neurological Disorder: Recent Insights and Diagnostic Challenges, 2024, Mavroudis et al.

    I'm getting quite disturbed going through this. Appreciate anyone else who wants to pick away at this too, as there is a certain amount of short bursts needed because of how shocking it is when I realise how many areas they have 'gone at' over the years to create some add-on. Some of these are...
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    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    On the note of clinical assessment, I've just looked up @Caroline Struthers brilliant article for a thread elsewhere ( It is not only drugs and devices that can harm - HealthSense (healthsense-uk.org) ) And the following paper was referenced, which has its own thread and I think is worth...
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    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    this feels like it could operate in an inverted way: if GPs (the medical part) are told to refer to clinics on the claim they are 'specialist' but they aren't medical and can only do 'rehab' which isn't appropriate because that is only safe for those who are being medically treated and then GPs...
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    MUS or MUPS and ME/CFS?

    I remember an article that was in a more hard copy type publication - health sense? or healthwatchUK? that had @Caroline Struthers as author regarding MUS? AHA! It is not only drugs and devices that can harm - HealthSense (healthsense-uk.org) full newsletter: The HealthWatch Newsletter...
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    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    The posts in the following thread are particularly disturbing when you add it in: UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment) | Page 29 | Science for ME (s4me.info) I hope @Maat won't mind me quoting...
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    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    It is the classic putting us under rehab without treatment, as if that makes it any different to the old guideline issue ("no treatment based on the principles of false beliefs and/or deconditioning" = re-education and re-enablement, we have thesauruses too) I am starting to think - and it...
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    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    The PROM section: "6.2 PROM (Patient reported outcome measure) The BACME 2023 National Services Survey shows that there is a wide range of outcome measures being used in specialist services. Many services continued using tools included in the National Outcomes Database established in 2006...
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    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    OK so I have noticed the BACME severely affected guide has a section on outcome measures: BACME-Severely-Affected-Shared-Practice-Guide.pdf on page 42-43 These include sections on: - why use outcome measures? - PROM - CROM (clinician reported outcome measures), for which there is a link to...
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    United Kingdom: Science Media Centre (including Fiona Fox)

    And this was when they had the long term 135 week follow up (which should be long enough to say that’s a sign of how much they are likely to recover particularly if you map it as a trajectory from earlier measuring points) and had objective data both of which they just arguing about choosing...
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    Review Understanding Functional Neurological Disorder: Recent Insights and Diagnostic Challenges, 2024, Mavroudis et al.

    I've taken a pause before looking properly at the last two papers. But, as you've mentioned it, one is on headache and the other migraine (Migraine associated with conversion disorder (Babinski's migraine). Analysis of a series of 43 cases - ScienceDirect ) The headache one...
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    Review Understanding Functional Neurological Disorder: Recent Insights and Diagnostic Challenges, 2024, Mavroudis et al.

    Reference 55 relates to Cauda Equina Syndrome - in particular scan-negative vs scan-positive (MRI): The clinical features and outcome of scan-negative and scan-positive cases in suspected cauda equina syndrome: a retrospective study of 276 patients | Journal of Neurology (springer.com) It...
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    Review Understanding Functional Neurological Disorder: Recent Insights and Diagnostic Challenges, 2024, Mavroudis et al.

    Reference 54: CRPS_FND_manuscript_150818.pdf (dundee.ac.uk) Maybe this is the one that mentions 'surgery' because they do say in their introduction: "Complex regional pain syndrome (CRPS) is a disabling chronic pain condition that may follow physical injury to a limb, either through surgery or...
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    Review Understanding Functional Neurological Disorder: Recent Insights and Diagnostic Challenges, 2024, Mavroudis et al.

    Also a bit worrying that this one is from 2013 and notes it is difficult to discriminate these, yet there is a paper linked to from it that suggests the opposite (so people picking up said diagnosis then might have the impression it is 'foolproof') - which is it?: The problem of psychogenic...
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    Review Understanding Functional Neurological Disorder: Recent Insights and Diagnostic Challenges, 2024, Mavroudis et al.

    reference 53 : Medical comorbidities in patients with psychogenic nonepileptic spells (PNES) referred for video-EEG monitoring - Epilepsy & Behavior (epilepsybehavior.com) NB: no mention of surgery here, or liking it, or sterilisation. I feel that they could have thought harder on the...
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    Review Understanding Functional Neurological Disorder: Recent Insights and Diagnostic Challenges, 2024, Mavroudis et al.

    reference 52 is a doozy that I can't see how it relates either, can't see mention of surgery or liking it or any sterilisation. but has helped me to put a note on a few articles where the PHQ 15 was used as a measure of 'unexplained symptoms' (as this includes the usual suspects and concludes...
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    Persistent physical symptoms after COVID-19 infection and the risk of Somatic Symptom Disorder 2023 Horn et al

    I have no idea whether the two questionnaires are related (as this one is 9 questions, the one in this link is 15), however having read the followigg paper which includes Sharpe, Stone, Carson saying that the PHQ 15 doesn't identify people with unexplained symptoms better than chance I thought...
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    Somatic symptoms in burnout in a general adult population 2023 Hammarström et al

    I have no idea whether the two questionnaires are related (as this one is 9 questions, the one in this link is 15), however having read the followigg paper which includes Sharpe, Stone, Carson saying that the PHQ 15 doesn't identify people with unexplained symptoms better than chance I thought...
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    The importance of screening for functional neurological disorders in patients with persistent post-concussion symptoms 2023 Debert, Silverberg et al

    I have no idea whether the two questionnaires are related (as this one is 9 questions, the one in this link is 15), however having read the followigg paper which includes Sharpe, Stone, Carson saying that the PHQ 15 doesn't identify people with unexplained symptoms better than chance I thought...
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    Effectiveness of a cognitive behavioural intervention for patients with undifferentiated somatoform disorder - 2019 Sitnikova et al. (CIPRUS trial)

    The following paper which includes SHarpe, Stone, Carson saying that the PHQ 15 doesn't identify people with unexplained symptoms better than chance I thought I'd do a quick google in case there were papers for which this reference might be relevant: Somatic symptom count scores do not identify...
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