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  1. Arnie Pye

    UK: Priority Setting Partnership: Medically Not Yet Explained Symptoms - 10 top priorities published July 2022

    That's like saying, 1) Which common treatment can we use to treat people who have sore, and disabling, feet, ankle and knee problems? 2) Which common treatment can we use to treat people who have recurring pain in the chest and/or back? 3) Which common treatment can we use to treat people who...
  2. Arnie Pye

    Long COVID and Chronic Fatigue Syndrome: A survey of elderly female survivors in Egypt, 2021, Aly et al

    I have seen a reference to gait disorder in Functional Neurological Disorder recently. Perhaps some descriptions of CFS include it as well. Gait disorder makes it harder to walk and almost certainly increases the incidence of falling. Ever since I joined this forum and started reading some of...
  3. Arnie Pye

    PRESSS: A New Patient-Centered Name for an Old Problem, 2021, Ventres

    (My bold) The use of the word "judiciously" in this context makes me think that the doctor prejudges his patients and decides that the patient is not physically ill as soon as they walk in the door. So, he then carries out the absolute minimum tests he can get away with (a Full Blood Count...
  4. Arnie Pye

    PRESSS: A New Patient-Centered Name for an Old Problem, 2021, Ventres

    I don't know why, but when I read this it made me think of Father Ted and the line "I hear you're a racist now, Father."
  5. Arnie Pye

    PRESSS: A New Patient-Centered Name for an Old Problem, 2021, Ventres

    But surely, Somatoform Disorder and Functional Disorder are just as pejorative as neurasthenia and hysteria, as soon as you looked these terms up for the first time and know what they mean.
  6. Arnie Pye

    Early Psychological Interventions for Somatic Symptom Disorder and Functional Somatic Syndromes, 2021, Berezowski et al

    Well, if getting a diagnosis of a medical problem takes years (as it so often does) then logically the chances of identifying SSD/FSS ought to be a challenge. The longer that patients can be kept out of the wastebasket the better. But I'm sure that isn't what the researchers wanted to know or to...
  7. Arnie Pye

    Impact of a mid-urethral synthetic mesh sling on long-term risk of systemic conditions in women with stress urinary incontinence, 2021, Mueller et al

    This research paper worries me. Are researchers trying to find evidence to "rehabilitate" mesh in the eyes of women? Because if so, this puts them in the position of being (potentially) happy to be torturers.
  8. Arnie Pye

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I think that is partly the reason. But I think a more important reason was that he was a doctor telling the kind of stories that the media wanted about the pandemic and which didn't contradict government propaganda.
  9. Arnie Pye

    British Psychological Society: Development and promotion of valid psychological screening to predict chronicity, post COVID-19 infection, 2021

    Source : https://thesciencebit.net/2021/08/09/how-illnesses-become-psychologised-long-covid-me-and-the-all-in-your-head-cartel/
  10. Arnie Pye

    Loneliness, loss and regret: what getting old really feels like – new study 'The Conversation' Carr & Fang 09/2021

    An article I read a few years ago shocked me rigid that a society could just let this situation arise. I don't think this could happen in the UK, but then I worry that perhaps I am naive. Title : How the Elderly Lose Their Rights Subtitle : Guardians can sell the assets and control the lives of...
  11. Arnie Pye

    BPS attempts at psychologizing Long Covid

    Talking about stress as the cause of anything is always an idea I consider to be very "slippery", and it is a short word that is much, much too convenient for doctors and society to trot out and use to dismiss people. Someone who loses their job and knows that they are unlikely to get a new one...
  12. Arnie Pye

    A guide to functional disease for a trauma conscious generation, 2021, Whitfield

    I accept that trauma may manifest as disease e.g. give someone a severe shock and they might have a heart attack - see Takotsubo cardiomyopathy. But, personally, I think it would be far more likely that untreated disease would cause trauma, rather than the other way around.
  13. Arnie Pye

    Lumpers Versus Splitters: Analysing the Effects of Soothers on Fibromyalgia and Chronic Fatigue Syndrome, 2021, Crowe (M.Sc. Thesis)

    Calling that list of things "soothers" is demeaning, and the language used in it is appalling e.g. "Drinking a yummy beverage". Babies need soothing, not older sick people. Why doesn't the author suggest patting people on the head, stroking their hair, and saying "There, there, everything is...
  14. Arnie Pye

    Chronic Fatigue Syndrome and Cardiovascular Disease: JACC State-of-the-Art Review, 2021, Natelson et al

    Sadly, that is what happens for a vast majority of all hypothyroid patients, as far as I'm aware. It is quite common for people with hypothyroidism to get a thyroid function test done because the doctor orders it, the patient tells the doctor they feel fine, but when the results come through the...
  15. Arnie Pye

    Asthenic disorders as a manifestation of chronic fatigue syndrome, 2021, Putilina

    For those who don't know what asthenic means (i.e. people like me)... Source : https://www.merriam-webster.com/dictionary/asthenic Definition of asthenic 1 : of, relating to, or exhibiting asthenia : weak Synonyms debilitated, delicate, down-and-out, effete, enervated, enfeebled...
  16. Arnie Pye

    United Kingdom: Kings College London; South London and Maudsley NHS Trust

    Sorry, this unexpectedly turned into a rant. From that history link given in post #23 The fact that the article has the centuries muddled up is proof that it is very old. The last century was the 20th century, not the 19th which is when neurasthenia was introduced and discussed a lot. If...
  17. Arnie Pye

    United Kingdom: Kings College London; South London and Maudsley NHS Trust

    I really wish it was standard practice for all web pages to list when they were created and/or last modified. In this case I mention dates because I didn't spot any references to Long Covid or Sars-Cov-2, so I'm assuming these pages have been up for a while.
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