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  1. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I'll warn you now... Most of the comments I've read on this video are vile. Coronavirus UK: What is 'long Covid'?
  2. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I always get the impression that BPS stuff is all about diminishing and demeaning the patient. There appears to be nothing a patient can say that is ever taken at face value and just believed.
  3. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    When I was growing up the people I knew and lived with and socialised with and went to school with (or their parents) were, to a large extent, imbued with the ideas behind the Protestant work ethic. I think this is extremely common. My father ran his life by it - hard work, early to bed and...
  4. Arnie Pye

    Open New York, USA: Assessment of N-Acetylcysteine as Therapy for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (NAC ME/CFS)

    *** Disgusting post warning *** I have been taking NAC for years. As an ex-long-term-heavy-smoker my lungs don't clean themselves out very well. NAC makes lung secretions thinner and they can be coughed up more easily than when the secretions are really thick. Without NAC my lungs would be left...
  5. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I've just discovered that this link works : https://post.parliament.uk/short-and-long-term-health-effects-of-covid-19/ but there appear to be no rapid responses to it now. I don't get any server errors.
  6. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The link you've posted has been removed, so obviously the fast-moving response has had the brakes applied. :(
  7. Arnie Pye

    Lipomas, Dercums, Adiposa Dolorosa

    It's a bit alarming to read in this thread that lipomas are hereditary. My late father had one very close to one of his cheekbones and he kept cutting it when he shaved. (I never asked him if he had any others that I couldn't see.) This was decades ago so the NHS actually removed it for him...
  8. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Let's assume that ME is always a result of the body not recovering from an unspecified virus. Expecting everyone's symptoms to be exactly the same irrespective of the actual virus that triggered the problem seems to be illogical to me. Does everyone on this forum have exactly the same symptoms...
  9. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I'm actually expecting that the NHS will stick with GET, CBT, BPS and the MUS approach for long Covid. British sufferers can only hope that researchers and medical staff in the rest of the world will do something [Edit: that will get to the ears of the British researchers and doctors] to help...
  10. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Coronavirus: 'Long Covid' patients need treatment programme, doctors say
  11. Arnie Pye

    New Sleep Poll

    I wrote about my sleeping habits and sleeping problems at some length in this thread from a couple of years ago : https://www.s4me.info/threads/ive-gone-nocturnal-again.2125/ In recent months I've been getting to sleep later and later. So, I'm currently getting to sleep at about the time my...
  12. Arnie Pye

    Cognitive Behaviour Therapy Complemented with Emotion Regulation Training for Patients with Persistent Physical Symptoms... Kleinstäuber et al (2019)

    If I counted correctly the paper has 21 authors. Why does this stuff need so many? What do they all do?
  13. Arnie Pye

    Cognitive Behaviour Therapy Complemented with Emotion Regulation Training for Patients with Persistent Physical Symptoms... Kleinstäuber et al (2019)

    If people are given anti-depressants their emotions get flattened. Is that what they want? I find it very annoying when I'm told, either in person or in articles, that my emotions are "wrong" or "inappropriate" or "excessive". I accept that people need help if they can't control their tempers...
  14. Arnie Pye

    BPS attempts at psychologizing Long Covid

    From post #153 above, in the first quote : I half expected to see the addition of "or else xxxxx" at the end of that sentence. For anything medical or health related to be mandatory always strikes me as being very threatening.
  15. Arnie Pye

    CBT for CFS Therapist Manual PAEDIATRIC CFS TEAM, ROYAL UNITED HOSPITAL, BATH, UK Loades, M.E. & Starbuck, J. | 2020

    Yes, I know what a pentagram is and its associations with witchcraft. I was making a sort-of joke which obviously failed miserably. ;) :bag: :whistle: :D
  16. Arnie Pye

    CBT for CFS Therapist Manual PAEDIATRIC CFS TEAM, ROYAL UNITED HOSPITAL, BATH, UK Loades, M.E. & Starbuck, J. | 2020

    I've seen people talking about doing this in the past. I have a few questions about it. 1) How do people archive links, documents, and images in the internet archive? 2) Don't the owners of the material object to their stuff being archived by complete strangers unconnected to the original...
  17. Arnie Pye

    Coronavirus - worldwide spread and control

    I think this recent blog post from Malcolm Kendrick deserves an airing in this thread : COVID – why terminology really, really matters I found the post well worth reading.
  18. Arnie Pye

    Coronavirus - worldwide spread and control

    I think my point still stands though. If people don't know how many people die under normal circumstances in an ordinary year, then covid-19 death numbers are numbers without context, however they are recorded.
  19. Arnie Pye

    Coronavirus - worldwide spread and control

    Do you know how many people die from all causes in Florida at this time of year under normal circumstances? If you don't then you have no context for the over 100 newly reported deaths per day, and may be scaring yourself unnecessarily. According to Worldometers there have been 51 deaths...
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