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You might also get more help if you hide just how bad you are. So another evolved response to being helped might be to conceal how bad things are, because a helper is more likely to continue helping you if they judge you have a reasonable chance of survival. What you indicate to others, is...

I also wonder if there is an evolutionary bias towards responding positively to being helped. Let’s face it if you are unwell or hurt, and require help to survive, you are much more likely to continue to receive said help if you actively encourage the helper with appreciation. So even if the...

Oh my goodness! This abdominal binder is a game changer!!! Sure, its not the most comfortable thing, but today I did agility with my dogs and didn’t get that horrid tunnel vision, drunk, woosey feeling as I finished. Indeed I was able to speak almost immediately on completion of my rounds...

Oh and it’s just arrived. Tried it in the garden for a bit. Will try in competition tomorrow & report back.

I’ll bear that in mind and keep experimenting. :-)

Yes! I have this issue too. I’m hoping a bit more compression will help that too. I’ve an abdominal thingy supposed to arrive today.

@Mithriel - Your experiences of brain fog are pretty rough. Mine tend to be more like I’m viewing the whole world through a very small keyhole, I can “get there” and find the answer I need, but it takes so much longer because I can only concentrate on that one very small part of reality at a...

Those abdominal binders are interesting. Thanks @Ryan31337 - I think one of these might be good for me. I like the idea that I could more easily remove it when not required. Leggings & socks are really items you really only want to apply ONCE in the day, so once you’re wearing them that’s it...

I agree @Milo they are hard to get on and off, and are not in any way comfortable. And at an earlier point in my illness I could not have tolerated taking them on and off [Edited to add “easily” - I probably “could” but wouldn’t have thought the effort worthwhile ;) ] Though for my one...

Thank you! It’s weird, I’m almost embarrassed to admit this is what I do with my spoons, because in many other ways I’m fairly limited. The compression aspect is interesting though. I think it also helps recovery. Also I’ve seen Workwell talk about short duration effort. Which holds true here...

Yup… me too. Even have our camper van rigged up so that I can elevate my head. It’s also useful for heart-burn, so I did this through my pregnancies too, long before ME hit. :)

Mod note: A number of posts have been moved from a useful study on this subject: Compression Garment Reduces Orthostatic Tachycardia and Symptoms in Patients With [POTS], 2021, Bourne et al This is very interesting. I use compression wear, and swear it helps keep me functioning longer...

I wonder how MS patients, post-chemo patients, or others with health complications would compare?

I seem to recall working on some response document with a tight deadline around July 2017. I remember as I was camping / glamping at the time and had to use a hotspot off my husbands phone to get online!

Indeed, or that the participants felt they were “supposed” to report more fatigue after this “imagination” exercise, otherwise they might be demonstrating their lack of imagination, and that might be a bad thing. Healthy controls mightn’t see the shopping bags as heavy so perhaps they didn’t...

That almost sounds convincing! Almost! :bored:

Another angle. If there are certain types of clinicians who can work out what is needed in individual cases “with a high degree of detail” then I wonder how closely their detailed recommendations would match? It is surely important that there is consistency about what different clinicians...

Would “treatment-induced reporting bias” be a good phrase?

Oh my! I thought I would be better at this game! :unsure: [Edit to add: Okay, bit of practice, and I’ve now managed 204. Ho hum!]

My thoughts: Short version: As I see it, there is an evolutionary advantage to having an instinctive survival response to danger and that survival response will produce certain typical symptoms that we can feel/observe. This survival response prepares us to take swift action. It seems we may...