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Yesterday, I sent some comments to Hans Knoop and Tanja Kuut on potential issues with the data in Table 3 and presentation of results in Fig 2. I have asked that they consider addressing these points—which may well be explainable—before the paper is published in final form. Lets see if they do...

One of my comments is on this topic. The answers to infection type are 'baked-in' to the questionnaire, so now you can't subset by e.g., enteroviruses. Having said that, glandular fever is relatively easier to confirm in the clinic.

Here are some (mostly minor) comments from me. I will also send these to the lead author.

Another great blog, Michiel. Have you considered submitting this to a journal as a sort of comment / view piece? It is definitely good enough.

"The solution presented is a Belgian compromise, one that everyone can live with but that makes no sense at all." Exactly. I did not know this term existed, but it captures the situation well.

The deconditioning and exercise avoidance hypotheses were *foundational* in the justification for ME-CBT and ME-GET. If you remove them, the whole house of cards collapses. They've really got themselves in a muddle, and patients will be better of if the BPS lot just admitted as much.

i agree. I think at some point there will be a reckoning, but for now the preliminary links between our environment and (chronic) illness are being treated as inconvenient truths.

Some recent posts in another thread reminded me of this paper. I'm suprised this has not been published yet. A tweet in the thread from the journalist who originally shared these snippets says "due to be published soon in the Journal of Neurology, Neurosurgery, and Psychiatry." That appears...

"Our foundation supports nationally and internationally recognized research projects, non-profit organizations to support those affected and charity projects to combat diseases such as myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) and related diseases. "We can build on a network...

Those damn yuppies!

Hello @sarahtyson. It's good to see you here. We don't have enough clinicians and researchers engaging with patients (here or elsewhere), in my opinion. A lot of good science and careful thought goes on on this forum. I hope this initial discussion isn't too overwhelming for you. Someone above...

I think this sort of thing—immune cell signalling, mediated by the brain—is probably my favourite candidate for a grand theory of ME. It could explain the brain issues/inflammation, immune dysregulation, peripheral nervous system involvement, and potentially link with cellular metabolism if...

There's a link to the data set at the end of the paper but it's currently dead (I assume it will go live when the paper is published). But I think it will be aggregate data.

How strange (also, quite ironic in this context).

I have a feeling she won't be answering questions on Twitter, especially this sort of technical stuff. I think this might be better included in correspondence.

It is strange that 'long covid' often gets translated to 'lung Covid' in Dutch. Why is that?

Naughty David leaving poor Anil on read! :(

OK. The error bars in this figure (Fig. 2) actually show the 95% confidence interval (mean ± 1.96 x SE). That's not what's stated in the caption for this figure. So that's an error, but a presentational one. What I don't understand is how you calculate an *overall* between-group difference from...

Is it not really weird that the standard errors were exactly the same for both groups for different outcome measures, often at T0, T1, and T2?!