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I guess it's not really a chair without a back. More of a stool — but that would be too low.

Yep, that's the same design, but the one I saw was more of a chair/perching stool than a small stool. These would be too low (I think), though I will check the heights of these. I'd like a version of this where I could sit/perch at a higher height.

I recently saw a chair that would be perfect for me in the kitchen. It's one of those where it has x-shaped legs when extended, and at the top has a simple canvas strip for support, with no back. When folded it could be placed in a small gap of say 10cm. Does anyone know what these are called...

2.5 years on and my views haven't changed.

Merged thread [UK] Cold Weather Payments Apologies for posting a link to The S*n, but they have published a list of postcodes for which either 1 or 2 cold weather payments will be issued for the December cold spell (to those who are eligible)...

New BACME document: ME/CFS Care and Support Plan Guidance

Not an expert but I don't think a resting HR in the 50s is 'too low'. Mine can also be in the 50s, although usually around 60 bpm.

Yep. And being able to attribute PEM as a discrete episode attributable to X, Y, or Z, is just nonsense. Doesn't work like that. This is gross oversimplification.

Classic MEA just sharing the article without any analysis / caveats. Not good enough. EDIT: There is now a post below this saying MEA recommends pacing etc, but at the very least they should be adding these disclaimers to the original post. Others in the replies have raised the same concers...

This article cleverly uses the story of someone much more severely affected than those in the study (90% of whom were employed).

Would like to see a deep-dive into this data if it's available and someone has the time.

or three cultural theory graduates.

o_O

There's also the European ME Coalition, who are part of the World ME Alliance. https://europeanmecoalition.com/about/ It's all a bit confusing, isn't it. But we have to get people together, internationally. Everything is too disjointed.

My first takeaway from this is that these people are now organising internationally — specifically across northern Europe — and it's key that patient organisations do so too.

This is how I feel. Yes, physically disabled, but the cognitive problems are huge. Just writing this now is very hard work. I have been vocal on the forum about my problems with visual processing. Right now just looking at this screen is hurting my brain. I can't read more than a paragraph or...

Because individuals represent PAG at such meetings, and PAG therefore needs to discuss their collective position on a range of different matters — one that should be in line with that of the wider patient community (if possible) — both before and after meetings. Otherwise the individual is just...

I agree. We've got patients at the table now. PAG must continue, and I hope they can recruit enough new members to lower the workload on individual members.

The real issue with PAG is the amount of admin work involved. That sort of work is not easy when you have ME. Unfortunately the secretariat support, once provided/funded by AfME and MEA, was withdrawn. I still don't understand why they won't provide some further support. A related issue is that...

MEA advert for PAG applications now online: https://meassociation.org.uk/2022/12/applications-invited-for-merc-patient-advisory-group/