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  1. Sean

    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    Yeah, where are the scatter plots? Which are kind of important info. If the plots supported the claims made by the PACE authors then they would have been published in the main paper, or shortly thereafter. The fact that they are still not published 14 years later, and have not been made...
  2. Sean

    Tjenesten og MEg | The health service and ME, Sintef FaFo

    I always took plausible to mean merely within the bounds of possible, not likely. But apparently the dictionary disagrees with me.
  3. Sean

    How does cognitive behaviour therapy reduce fatigue in patients with chronic fatigue syndrome? The role of physical activity, 2010, Wiborg, Knoop +

    Yes, can't have something as petty as falsification getting in the way of the grand plan. The show must go on!
  4. Sean

    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    Evidence and the models built on it have to reach a minimum standard before it is of any validity, let alone can be safely applied in the clinic and medico-legal advice. The vast majority of psych research into ME/CFS does not reach that standard. At best – and I am being very generous here – it...
  5. Sean

    Why are women more fatigued than men? The roles of stress, sleep, and repetitive negative thinking, 2025, Golmohamadi et al

    Not to mention having to do most of the unpaid work in this world (e.g. housework and child-rearing), on top of everything else.
  6. Sean

    Time course of exercise induced alterations in daily activity in CFS, 2005, Black and McCully

    Indeed. They are lighter than a cotton t-shirt. Are they seriously suggesting that the weight of summer clothes is too much of a burden? It is a blatant demonstrably fraudulent claim, and should never have been accepted by the trial steering committee. The real story, of course, is that they...
  7. Sean

    ME/CFS – The Devastating Chronic Disease - With No Cure, 2025, Robinson

    It is possible that both progressive deterioration and substantial sustained improvement are true. It may be progressive for some and not for others.
  8. Sean

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Or die quietly, out of sight, so as not to upset the normal healthy people who make these decisions.
  9. Sean

    News from the USA, United States of America

    RFK Jr. says HHS will determine the cause of autism by September Let me guess: Vaccines, pasteurised milk, and not enough raw meat?
  10. Sean

    Physical function and psychosocial outcomes after a 6-month self-paced aquatic exercise program for individuals with [ME/CFS], 2025, Broadbent+

    It isn't just the null results alone that sink the psycho-behavioural ship, though they are enough. It is also the marginal value of the non-null results. The pattern is consistent throughout their studies. Even when they get a real result it is so small as to be practically meaningless to...
  11. Sean

    Iron dysregulation and inflammatory stress erythropoiesis associates with long-term outcome of COVID-19, 2024, Hanson et al

    I also am dealing with long-term problems with low ferritin levels, and trying to get them back up and keep them there, with no other abnormal iron related measures and no sign of anaemia. Standard oral iron supplements are a disaster (ferrous sulphate, and Maltofer – the pill form is just...
  12. Sean

    Physical function and psychosocial outcomes after a 6-month self-paced aquatic exercise program for individuals with [ME/CFS], 2025, Broadbent+

    Yes, which is one big reason they are so reluctant to accept criticisms of psycho-behavioural/rehabilitative studies for ME/CFS, et al. If they do accept them, then they have to face the fact that the broader project is also corrupted by these methodological problems.
  13. Sean

    News from Aotearoa/New Zealand and the Pacific Islands

    Interesting development. :emoji_popcorn: :emoji_nerd:
  14. Sean

    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    With extremely serious consequences for you whether you accept the diagnosis and treatment or not. Lose-lose. It is an appallingly cruel Kafkaesque double bind to force a sick person into. - You are in denial. - No, I'm not. - So you admit it? Non-BPS papers get scrutinised by this forum...
  15. Sean

    Review (Hungary) Interdisciplinary consensus statement about the diagnosis and treatment of [CFS]/myalgic encephalomyelopathy, 2025, Simonyi et al

    When medicine cannot face up to its failures, and having them pointed out by their victims patients.
  16. Sean

    Protocol Reconceptualizing rehabilitation research via an enactive framework and a radically interdisciplinary cross-analysis... 2025 Levi et al

    Abandoning both causality and falsification. :rofl::rofl::rofl: That is all they do. All the form, and none of the content.
  17. Sean

    We need a diagnostic test for fatigue induced by sustained activity

    Not clear to me that PEM is a on/off binary thing, nor could be meaningfully measured in that way. If anything, my experience suggest it is a continuous scale, but non-linear, which greatly complicates assessment of it. Complicated even further by the degree of non-linearity itself being highly...
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