Yeah, where are the scatter plots? Which are kind of important info. If the plots supported the claims made by the PACE authors then they would have been published in the main paper, or shortly thereafter. The fact that they are still not published 14 years later, and have not been made...
Evidence and the models built on it have to reach a minimum standard before it is of any validity, let alone can be safely applied in the clinic and medico-legal advice. The vast majority of psych research into ME/CFS does not reach that standard. At best – and I am being very generous here – it...
Indeed. They are lighter than a cotton t-shirt. Are they seriously suggesting that the weight of summer clothes is too much of a burden?
It is a blatant demonstrably fraudulent claim, and should never have been accepted by the trial steering committee.
The real story, of course, is that they...
It isn't just the null results alone that sink the psycho-behavioural ship, though they are enough. It is also the marginal value of the non-null results. The pattern is consistent throughout their studies. Even when they get a real result it is so small as to be practically meaningless to...
I also am dealing with long-term problems with low ferritin levels, and trying to get them back up and keep them there, with no other abnormal iron related measures and no sign of anaemia.
Standard oral iron supplements are a disaster (ferrous sulphate, and Maltofer – the pill form is just...
Yes, which is one big reason they are so reluctant to accept criticisms of psycho-behavioural/rehabilitative studies for ME/CFS, et al. If they do accept them, then they have to face the fact that the broader project is also corrupted by these methodological problems.
With extremely serious consequences for you whether you accept the diagnosis and treatment or not. Lose-lose.
It is an appallingly cruel Kafkaesque double bind to force a sick person into.
- You are in denial.
- No, I'm not.
- So you admit it?
Non-BPS papers get scrutinised by this forum...
Not clear to me that PEM is a on/off binary thing, nor could be meaningfully measured in that way.
If anything, my experience suggest it is a continuous scale, but non-linear, which greatly complicates assessment of it. Complicated even further by the degree of non-linearity itself being highly...
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