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I think it might be better to say that those who blocked it should be required to publicly put their case for it, with their names attached. This still names and shames them, but somewhat indirectly, and puts the onus on them to overtly justify their strident opposition, via the normal...

If you ever want an example of how arbitrary and pathological psychologisation can be, this is a good one.

Interesting to see that after the initial burst of signatures the rate of additional ones between approx. Nov 2023 and Nov 2024 was consistent, making up a significant proportion (approx. 20% of the total, at Nov 2024), and showing no sign of slowing. That suggests that word is still slowly...

Excellent piece. :thumbup:

I mean, it isn't completely wrong. But it is just generic stuff that applies to all health problems and general life issues. There is no reason to think we need special training in it. This kind of 'advice' is just insulting. Do they honestly think that we are incapable of learning from hard...

I find a hot bath or shower a mixed bag. It is kind of exhausting. OTOH, it does a nice job of relaxing and soothing aching tired muscles, and generally relaxing me. Do often lie down and have a nap or quiet period afterwards. Not exactly energising, but in some way therapeutic.

A particularly cruel irony.

I am increasingly of the view that prizes and gongs are seriously distorting the research system across all of science, and we would be better off without any of it. In the short-term it has given the psycho-behavioural school an opening they don't deserve with their quick-fix low-cost...

Sounds promising. But I wish they had not called it 'Miracle'.

developing self-management skills early on to avoid consistently over-exerting oneself and worsening symptoms over time, particularly concerning PEM. And how the hell do we do that when we don't even have the capacity to reliably do minimal self-care and life admin, without triggering PEM or...

Try this: https://retractionwatch.com/2025/01/23/thousands-demand-withdrawal-of-review-article-recommending-exercise-therapy-for-chronic-fatigue-syndrome/

Long time since I read Engels. But IIRC, he was not talking about psychosomatic type psychosocial factors, but things like political and economic factors limiting access to medical help, and social support for the sick and disabled, etc, and how their lack can inflict secondary biomedical and...

And more than a little embarrassing for some.

I think the fact that any kind of exertion can cause/trigger PEM strongly suggests that whatever the underlying primary problem is it must be something that has a common element throughout the entire body and its functions (or almost all of it).

Doesn't even need to be overhead, though that is the worst position. Holding them horizontal is also a problem. Any activity that requires arms being (actively) held up against gravity to any degree is a problem.

You might be thinking of the article from the Royal Australian College of General Practitioners (RACGP) on 'incremental exercise' for ME/CFS, written by Glasziou, which only cited PACE, Larun Cochrane (2019 version), and for some opaque reason an article on Long Covid research. The actual Oz...

CBT is the most studied treatment, with promising effects for patients with, for example, chronic fatigue syndrome, After 35 years of dominance and endless rigged studies, and they are still stuck at the merely 'promising' stage? How is this not widely dismissed as a complete failure of this...

Worth repeating. The real situation is so bad and deeply entrenched that is difficult to get those unfamiliar, and even some familiar, with it to understand and believe it really is that bad. Nobody wants to face up to the truth that things really can go that far off the rails, inflict that...

Or your 'moral' character. You know, choosing not to get better, and enjoy those wonderful secondary gains.

Definitely worth looking into. :thumbsup: