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Most of us with ME were achievers, driven people who want to do stuff Citation required. This is just one of the BPS tropes trying to find something, anything, that they can hang a psychopathology label on. and to try and stop ‘doing’ needs a lot of will power and patience. I agree with this...

Exactly. As far I can tell one of the most important facts and clues about ME/CFS is that the average patient is not more deconditioned, let alone profoundly, and that when we have good day we can immediately do a bunch of stuff, without having to re-condition at all. That flatly contradicts...

HEROES-RECOVER And cowards don't? :banghead:

Gratuitously offensive, pre-emptively defensive, and based on a complete straw man. Nobody is suggesting patients should stop all movement and activity and take to their bed, until they recover. Only that they should learn to stay within safe limits. I am not even convinced it ever was common...

Don't know if I have been tested for GGT levels. But I don't think there have been any liver function tests. The high ALP was originally noted by the professor of immunology who diagnosed me with ME/CFS. Neither he nor any other clinician since has thought it something worth following up on...

The word 'may' is doing a lot of hard work in that comment.

Which is exactly how cults work.

According to standard annual bloods my lipids have always been within normal, apart from a couple of borderline results over the years. Plus a couple of times my fasting sugar levels have been borderline, but the follow up test for diabetes has been negative. Only consistently abnormal...

See also: https://www.merseysideskeptics.org.uk/podcasts/skeptics-with-a-k/episode-312 Archive version: https://archive.org/details/swak312 Placebo stuff starts at 48 min.

Yep, be careful what you wish for. Besides, a lot of what he is proposing goes very much against entrenched corporate/donor interests, and it seems implausible that they or the incoming admin and their party will allow him to interfere in that cosy nexus of mutually very beneficial interests...

Yet another one of those deep medical mysteries about why people with chronically and substantially reduced activity capacity also have reduced general health and fitness. Real head scratcher, isn't it.

I think we should remain open minded about sub-groups. But I also expect that any apparent sub-groups are most likely to be artefacts of poor methodology, mainly imprecise diagnostic criteria.

A little disturbing that I feel happy about a paper confirming such appalling outcomes, including after 'rehabilitation' therapy. :cautious: But if it is robust and holds up then it is powerful ammunition on a number of fronts. Not least of all against the completely unproductive rehab...

He wants to devote half of the National Institutes of Health budget to researching alternative health care. Oh boy. :grumpy: Also, that tweet might have been posted in Trump's account, but it was definitely not written by him. He does not write in that style at all, and any suggestion that he...

I don't doubt such exercises might help many people on these measures. But that kind of misses the point for those who cannot exercise at all, or not consistently, or not to that degree.

I think it is a big mistake to conflate fatigue with PEM. They are not the same. I might be misreading that quote. That said, I do agree with oldtimer that there does seem to be progress in at least recognition of the problem and how serious it is, and how badly it has been handled until now.

I don't have an in principle problem with experienced senior nurse having some kind of associate role. My very limited experience with them is satisfactory. No red flags, so far. Given the increasing shortage of GPs and health budget shortfalls, at least here in Australia, we don't really have...

I have been assessed a 4-5 times over the years for basic muscle strength, including the core, and not once have they found anything significant. The confusion on their faces was obvious, their silence about the implications damning, and naturally they still recommended core strength exercises...

profound fatigue, which we called PEM, post exertional malaise. mumble, mumble :grumpy:

They are still stuck in their monomaniacal obsession with 'fatigue'.