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  1. ahimsa

    Does Covid-19 vaccination reduce the risk of Long Covid?

    Saw this article in The Guardian: Coronavirus vaccines may reduce risk of long Covid, ONS study finds
  2. ahimsa

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    A quick search of Putrino and "autonomic rehabilitation" found this presentation: https://www.health.ny.gov/commissioner/grand_rounds/multidisciplinary_approaches_long_covid_care/docs/putrino.pdf
  3. ahimsa

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Thanks for posting the link. Does anyone know more about the "intensive autonomic rehabilitation therapy" that was mentioned? Quote:
  4. ahimsa

    Does Covid-19 vaccination reduce the risk of Long Covid?

    Moved post (Could not find this article on the forum - hope this is not a duplicate post!) Not peer reviewed - hoping those who understand the issues will comment. Thanks! Long-COVID symptoms less likely in vaccinated people, Israeli data say
  5. ahimsa

    Article : What’s the Difference Between Chronic Fatigue Syndrome and Fibromyalgia?

    I was disappointed to see the "You + ME Registry" twitter account (run by Solve ME?) retweet this article. https://twitter.com/YouMeRegistry/status/1486021325328109572
  6. ahimsa

    Covid-19 vaccination experiences

    Hi @Samuel I'm no expert on reddit but have used it a little bit over the years. I even created an account but rarely log in. I think the "COVID pinned tweet" is one of two "pinned" threads (marked so that they will stay at the top of the list) in the CFS topic area. The subject line is...
  7. ahimsa

    CDC ECHO monthly webinars 2022 - Long COVID & Fatiguing Illness Recovery Program

    Just saw this image on twitter with more information about who's behind this webinar series. At the end there's an email address for questions: LCecho@salud.unm.edu Tweet from @itsbodypolitic
  8. ahimsa

    CDC ECHO monthly webinars 2022 - Long COVID & Fatiguing Illness Recovery Program

    I thought I'd post the information that's listed on the Zoom registration page: Topic: Long COVID & Fatiguing Illness Recovery Program - Monthly Session Description: A CDC-funded monthly webinar-style ECHO learning session to rapidly disseminate Post-acute Sequelae of COVID-19 (PASC) and...
  9. ahimsa

    Compression Stockings Improve Cardiac Output and Cerebral Blood Flow during Tilt Testing in (ME/CFS)Patients: A Randomized Crossover Trial, 2021,Rowe

    Any recommendations? I've seen some of these garments online that attach with velcro (so they are adjustable) but I don't know what I should be looking for. Thanks!
  10. ahimsa

    CDC ECHO monthly webinars 2022 - Long COVID & Fatiguing Illness Recovery Program

    OMF tweeted about this ECHO webinar series today: "Join in on a monthly ECHO webinar series funded by @CDCgov, focusing on #LongCOVID and #MECFS. The next session will held January 13, at 12:00 - 1:00 pm PT. Register now: https://bit.ly/3n7drja" "Following webinars in the series will take...
  11. ahimsa

    More Than 100 Persistent Symptoms of SARS-CoV-2 (Long COVID): A Scoping Review, 2021, Hayes et al

    This. Just as an example, I've had SVT (supraventricular tachycardia) since age 11. It never interfered with work, school, exercise, or any activity. Yet when I mention SVT in my medical history (heart rate of 185-200) some doctors have wanted to focus on this even though it is quite...
  12. ahimsa

    Covid-19 vaccination experiences

    Sure! I didn't write anything down, so this is all from memory (and you know how bad that can be.....) but here's what I remember. It started the morning after the shot with very sore arm, general aches and pains and feeling feverish. It mostly felt like a big ME crash where everything feels...
  13. ahimsa

    Covid-19 vaccination experiences

    No worries! It's so easy to get confused when a post discusses several topics. Glad you're feeling better today.:)
  14. ahimsa

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    For some patients, long COVID is their new reality This is a 10-minute segment from NPR's popular radio program All Things Considered. There's a transcript for those who want to read the story rather than listen to it. In addition to interviewing doctors, and patients with Long Covid, they...
  15. ahimsa

    Covid-19 vaccination experiences

    I'm so sorry that it's causing you a bigger reaction than the second shot. I know everyone reacts differently but this possibility is why I wanted to get the shot after Thanksgiving. As I said, for me the shingles shot has produced the worst reaction so far, but I'll report back after I get my...
  16. ahimsa

    Covid-19 vaccination experiences

    This is also the thread for reporting about COVID booster shots, yes? I just set up an appointment for mine. Due to most appointments being full, and the pharmacy not letting me schedule an appointment too far in advance, it took a while before I could find a date/time that would work for me...
  17. ahimsa

    The Washington Post: Ad campaign features testimonials from young ‘long haulers’ to motivate vaccine-holdouts

    [not sure where to post this, hope this is the right place, feel free to move] Health Ad campaign features testimonials from young ‘long haulers’ to motivate vaccine-holdouts After her covid-19 infection, 20-year-old could no longer remember first date with boyfriend even after looking at...
  18. ahimsa

    BCG Tuberculosis vaccine - and related testing - EpicGenetics

    Merged thread Selling Certainty In a sea of skeptics, this physician was one of fibromyalgia patients’ few true allies. Or was he? https://www.statnews.com/2021/10/20/selling-certainty-epicgenetics-physician-was-one-of-fibromyalgia-patients-few-true-allies-or-was-he/ I have not read the whole...
  19. ahimsa

    DecodeME - UK ME/CFS DNA study underway

    Link to transcript for episode 72 of The Genetics Podcast: https://assets.fireside.fm/file/fireside-images/podcasts/transcripts/b/b68c1a5f-73fe-4072-b2de-e20e773c57d8/episodes/f/f4ffcf42-600a-4d3e-85d0-ccc27f76f00f/transcript.txt I just skimmed it a bit and noticed it has some typos (it's...
  20. ahimsa

    Walktober for ME Action: A Day To Walk For You (October 30)

    I thought I should mention, just case the subject line makes it seem like there is only one day only to donate, that the fundraiser is accepting donations for 9 more days.
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