Search results

It makes some sense, if we call LC anything that lingers more than a few weeks, then chronic LC (or long long Covid, heh) is when it lasts long enough to be a chronic illness, like a year or more.

I have a set of Earpeace earplugs. I don't use them for sensitivity to ordinary sound but to loud noise. But they work well and have inserts so you can adjust the level of noise reduction.

The authors of this paper simply don't understand the nature of long Covid or chronic illness in general. People expect certain outcomes from therapy because they know their bodies.

This has all the tropes of bad 2010s era autism reporting. Autistic people aren't withdrawn into their own inner world, they just have a different way of interacting with it that many non-autistic people don't understand, and have thus mislabeled as withdrawal. Granted, this article is about...

Quite fascinating. They seem to be going in the same direction as Jared Younger--thinking a cause is neuroinflammation triggered by ordinary events after COVID dysregulates the immune system.

Just a couple weeks ago I spent the whole day running errands. My last stop was at the grocery store. I was so tired I started putting stuff in my bags without scanning them, at the self-checkout. When I realized what I was doing, I dumped all the bagged groceries back into my cart and went to...

I thought of it a bit differently. If you believe autistic people are more likely to have FND, then doctors will just say "You're not sick, just crazy, it's the autism" much like how they dismiss women. Autistic people may describe their symptoms in language others have trouble understanding...

The old "You're simultaneously a mentally frail malinger and an overachieving perfectionist"

ME/CFS is one of the factors that forced me into being alone and celibate. It's good that researchers are recognizing the effect of systemic conditions on sexual health.

Yeah, a disease state means you know something about the pathology. We still know rather little about what causes different manifestations of long Covid, and it's almost certainly multiple disease processes that may share some aspects.

Since long Covid is now any health problem caused by Covid, it seems long Covid is more of a cause than disease. A category of illness rather than one illness. It resembles physical trauma, where all the injuries have the same cause but many different outcomes and can affect any body part.

Yes. I was worried but I'd have been a lot more worried if I hadn't had migraines with aura before.

One time I was having either a migraine or a stroke. Not only was I getting the characteristic visual aura, I was having trouble speaking and my right hand was tingling. Because three separate nerves supply the hand, but most of it felt funny, I knew it was central, not peripheral. Instead of...

The mainstream view is that autism is a pathological condition and should be treated. The autistic advocate view is that autism is a normal state of existence, but that mental problems that cause serious trouble functioning can co-occur and should be treated. A very crude analogy might be a...

They're very misinformed. Long Covid is a huge spectrum and symptoms can range from annoying to debilitating. ME (at least by IOM criteria) has a minimum severity, it's always quite debilitating.

I agree with you strongly. Most disabling or most burdensome symptoms would be better. Medicine has a long history of dismissing post-infectious illness. Perhaps more broadly, they dismiss illness that aren't likely to kill you.

I wonder if it could help symptoms if someone has orthostatic hypotension. But obviously raising blood pressure willy nilly is a bad idea.

That's somewhat sad. I'm anticipating your results because I'm hopeful we'll learn a lot from them. It might be the second major event in ME/CFS history since I became familiar with the disease in 2021 and saw the publication of the new NICE guidelines.

I'm convinced brain and nervous system autopsy studies have real scientific potential. I strongly agree with Sid in that not studying this earlier is a massive failure.

I definitely empathize with doctors who can't help their patients because treatments are not available or because circumstances mean the patient can't take care of themself. I'm pretty my problems have made doctors feel frustrated at times, not just with ME but several other things that lacked...