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And she is peddling this nonsense as a Dr of Neurology at “The Cheltenham Literature Festival”, promoting her populist book? I am imploded from the irony. She should stop making sub-sixth form hot take books and courting the press her whole personality, and go and do some medical treatment on...

She seems to be the only known member.

Love that for him. I really think if everyone leaves him to it, he will put people off eventually. He’s not engaging. Like those religious groups who put a speaker in the town centre or near a train station, wearing a sandwich board and handing out leaflets about religion or the world ending...

Has anyone contacted Sarah Boothby to ask? She is on Bluesky.

Wow thanks guys! I could really use it as well.

I get UC but I think I don’t qualify because my place has grade c rated energy efficiency and it has to be lower? Has that been removed now?

I don’t know if this will be universally helpful for pwME but I have a new item which I love. It’s called a caravan washing bowl, it cost £3.99. It’s a plastic washing up bowl on little legs, with a big plug in the middle. I think it was from BM bargains or Home Bargains. I can’t have a...

They leave one in whilst they add a second!

I just asked ChatGPT and it said the main points were around lack of diagnostic test, reframing ME/CFS from BPS to medical, lack of specialist services, lack of research, lack of assistance with benefits and social care. In summary it said UK and US patients all pretty much faced the same...

I honestly don’t know how they could get their foot lodged in the mouth so regularly. At this point they’re just trolling pwME

The cynic in me wonders whether it’s a weird recruitment drive for the members website. Why such fanfare that CS had input into a nothing article on an unknown webpage.

Over on Social Channels… The MEA proudly announced that Charles has given input/advice on an article. They have said to read the article you should “search the article name in the graphic” so they are promoting an article, their involvement, but not providing a link.So far, so annoying. The...

I also get a hormone rush - I assume that’s what it is, no idea really - usually during PMT for a few hours I feel like the Incredible Hulk, I really need to go for a run/long walk/clean the whole house, and I can. Feel able to undertake feats of strength, would have an go at lifting a car if...

I wrote a whole post on why

Shame you chose such a divisive which will prevent that. And wrote an article conflating two different things which shouldn’t be. Meta. Maybe you’re the “lesbian AIDS” writer, well intentioned but erasing us, the ME/CFS community. Very post-post modern.

Super offensive then, as I suspected. As usual with ME/CFS this is “everything about us, without us” I hear EDS is being erased, why not write about that from your own experience?

Hello I found the title concerning due to my understanding of jokes from the 90s UK that it was unfair lesbians wouldn’t get AIDS (which is untrue, in particular in instances in South Africa of so called “corrective rape”). Even in 1999 the film “Boys Don't Cry” was released, I think there was...

Interesting. I am lucky in that I was able to get a suitable ground floor home and have some input into a kitchen-diner. I spend a lot of time thinking about how to organise it so it works for me, as well as small changes like coloured lights to create variety. It’s probably a very rich seam of...

I always feel like pacing implies there’s enough available, if only I would manage it properly. If I don’t have energy it’s because I stupidly burned through it all instead of pacing myself.

I knew I was seeing double then couldn’t find the other one, had to search a bit!