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  1. MrMagoo

    Living With: UK digital platform for NHS services including ME/CFS

    I love that their evidence section is evidence that their app works and the questionnaires they use work. Wonder whether they have read Nice 2021?
  2. MrMagoo

    “Overdiagnosis is a danger to our patients and the health system” (article in Irish Examiner newspaper by a GP)

    Was it Trump who proposed stopping Covid testing, because the numbers of people with Covid were too high? This seems similarly- privileged idiocy.
  3. MrMagoo

    Preprint Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, DecodeMe Collaboration

    People see what they want to see, at the end of the day the BPS crew will always find a way to word salad everything back to “they’re making themselves ill”. When I worked, resilience was always lacking, apparently. Then when lockdown came and my job went and I was bedbound alone, guess what...
  4. MrMagoo

    Preprint Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, DecodeMe Collaboration

    Same, I had a very good GP who explained that pwME are always trying, they’re always pushing against it, always looking for info, answers, help etc. Depressed people tend to somewhat “give up” and be depressed, until they’re not.
  5. MrMagoo

    Could ME/CFS and Fibromyalgia Be Narcoleptic Spectrum Disorders?

    Following, because I’ve always had traits of narcolepsy and cataplexy since teenage and wouldn’t be surprised by a link with ME/CFS for me personally.
  6. MrMagoo

    The Rumpelstiltskin effect: therapeutic repercussions of clinical diagnosis, 2025, Levinovitz & Aftab

    In fact, the miller tells lies that his daughter can spin straw into gold, so the king has her locked in a room with straw and a wheel, with a deadline to turn the straw to gold by morning- otherwise she will be killed. It’s kind of easy to see why she promises her first born child to Rumples-...
  7. MrMagoo

    The Rumpelstiltskin effect: therapeutic repercussions of clinical diagnosis, 2025, Levinovitz & Aftab

    I was certain I remembered having the ladybird book of Rumplestiltskin, and it was because he put his foot through the floorboard! The internet tells me, when the Queen said his name he stamped so hard in anger, his foot went through the floorboard and was stuck. In a rage, trying to pull it...
  8. MrMagoo

    The Rumpelstiltskin effect: therapeutic repercussions of clinical diagnosis, 2025, Levinovitz & Aftab

    I hate the “why are you so keen to be labelled” I’ve had it a few times, last one was when I thought I had mumps. On that occasion I wanted to be tested (labelled if you like) because it’s a notifiable disease and NHS advice was to see GP for a test. I also remember early on in Me/CFS being...
  9. MrMagoo

    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    This is worse than just us. Obviously as per usual, it’s worst for us and those of us who are severe/very severe. This has been in the background whilst they were trying to cut PIP and merge it with LCWRA. We need to go to Benefits and Work, Crips against Cuts etc
  10. MrMagoo

    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    Is thee a name for the “whataboutery” involved in the constant, constant rehash and re-writing of inappropriate and harmful rehab approach? It’s draining. Always having to read through projects, papers, app proposals, testing, questionnaires etc which after you distill all the information down...
  11. MrMagoo

    Lightning Process: Evidence that participants are taught or expected to misrepresent or lie about their symptoms

    Reading about LP just takes me back to that CBT. No more treatment if you don’t agree things are better. If things aren’t getting better, you’re not doing it right. If you do it right you will feel the benefits.
  12. MrMagoo

    Lightning Process: Evidence that participants are taught or expected to misrepresent or lie about their symptoms

    You know what, it’s not actually that much more extreme than the old CBT based on GET.
  13. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Yes it does seem to be about being so much more cleverer and smarter than the average bore.
  14. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    God he’s interminable with his tweeting. How is this new? Does he need me to get some crayons, and a copy of Genetics for Dummies?
  15. MrMagoo

    Lightning Process: Evidence that participants are taught or expected to misrepresent or lie about their symptoms

    What is a cult? An AI overview Includes -devotion to a person or ideal -manipulation -isolation from friends and family etc -harmful practices
  16. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Good. Let’s hope he stays “stealth” media wise
  17. MrMagoo

    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    I don’t think they will scrap it though. It’s already been funded/sponsored/sold It’s probably producing “data” out the back for clinicians/ICB’s/PROMS If anything, the bits bolted on the front end to “help” patients is a bonus afterthought, it’s not the purpose of the app.
  18. MrMagoo

    Virtues that Mitigate the Deprivations of Chronic Fatigue Syndrome, 2025, Hartman

    Brilliant, philosophers are up to this as well as psychologists?
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