Thanks Andy!
Thanks, I was trying to convey how long people have been asking for action with a bit of humour, and the age of the clip kind of says that but see...
Thanks. Agreed, the video was aimed at non ME people, I'm not sure the best way to get it out there, I've emailed a few charities and I'm going to...
Ive just emailed a few of the charities. Hopefully they will share it.
Transcript ME has a lower quality of life than HIV/AIDS, Stroke, Parkinsons, Multiple Sclerosis (slide) ME patients feel effectively the same...
[MEDIA] ME is one of the most misunderstood diseases. 1 in 5 parents face child protection proceedings, patients have been sectioned and abused,...
I rejigged the ending from 4.00 mins onwards. Still need to think about how to handle new versions. [MEDIA]
Does the 18.9% serious adverse events in the placebo group suggest that adverse events in PACE were not properly recorded?
Thanks that makes sense. I know which clip youre referring too. Unfortunately I can't edit the video and keep the URL. I will have a think about...
@JoanNI Id be happy to edit the video if you want anything specific, sadly I don’t think the quality would be good enough for TV though.
It's a tricky one, producing a TV quality video would likely need a 3rd party and would be expensive and the cost would need to be factored in....
Sure I’d be happy for you to use it. Im not 100% but shouldn’t think it’s a problem to show during a conference.
First clip was from ME and me bbc doc. The rest are from parliamentary debates and a petition meeting in Scotland. I don't think there are...
I think Facebook, YouTube or Twitter ads would be better than TV because you can have additional links and actions. Might be able to get more...
YouTube description Michael Sharpe was an author of the controversial PACE Trial that has been widely discredited. On 17 March 2019 he was...
[MEDIA] Transcript: BBC Today Programme March 2019 (clip) An Oxford professor has stopped his work on chronic fatigue syndrome also known as ME...
I made a video response to Sharpes interview. [MEDIA]
@EspeMor A few suggestions, sorry they may involve considerable effort/cost which I know is in short supply. Just thinking out loud. Some short...
@dave30th Is there anyway of incorporating the MPs that have signed up to MAIMEs? Over 30 have signed up now....
The original link was from Twitter I think. There are links to the public comments at the bottom of the document but I don't think they've been...
Separate names with a comma.
