Thanks
It’s a collection of 19 public statements from participants collected for the tribunal in a pdf. There’s too many to post unfortunately.
Is this any use?...
Are any of these press releases available?
Thanks for the info Jen. Great to hear about the video content, looking forward to it. I had a look at the groups and wasn’t sure which one to...
Agree we need a slick and coordinated campaign, ME Action are possibly best placed to do this, or a number of skilled volunteers(designers, video...
Gary showed an interest in doing a podcast on twitter. I think a series of podcasts would be a great medium to show the enormity of the problem...
This is also a concern [MEDIA]
Were there any other major holes in the govt response?
They refused data to Keith Geraghty and 3 of them sat on the cochrane review. [MEDIA] They also cited that the authors have published responses...
If original data was stored in MS access then having no expertise is even more ridiculous. Are there any more FOIs planned? Asking for...
Is this any use? details of who was responsible for database design and management [MEDIA] Seems to confirm it is a database, and looks like they...
This is horrendous. I hope Esther Crawley and TV/Radio Dr Phillip Hammond (I think he works there) are both asked for public comment and are made...
Just heard they received a $1 million donation, thanks to everyone who posted. https://pineapplefund.org/
Great to see them engaging with patients. They’re also taking suggestions on their Facebook page. Good shout on the Biobank.
I just saw this in a FB group, hope it may be of some use. http://www.hfme.org/Word/Hospital_notes_for_ME_patients_Extra.doc
Perfect, I didn’t know you could do that.
Personally, I think a web page looks more formal especially to an external party or organisation. I appreciate its only a cosmetic point, it might...
Sorry if I wasn’t clear, I meant a web page rather than a forum thread, just wondering what the plans are for the future but im probably getting...
I know what you mean, they do host open letters on there but it may be better to put it somewhere on this site, like in a blog/pages section for...
Separate names with a comma.
