I don't think of fatigue being my main symptom because I am fortunate enough to not feel awful all the time having drastically reduced my...
PEM has been acknowledged in Long Covid in the USA. Has it in the UK??
[MEDIA]
I have watched some of their discussions and Greenhalgh has been featured including speaking about Long Covid. Perhaps this was last year? I got...
Didn't know where to put this; I didn't know about this [MEDIA] Edit: I'd like to respond but don't know if I will be able to - has anyone done...
It's disgraceful that others would take part in such conversations/events after everything that has happened. What is he doing for them?
How have such people amassed so much power?
I am also worried about PFAS which is somehow an issue I only discovered relatively recently. When people said "forever chemicals" I thought they...
Thank-you :heart:
I completely agree with this. I have been quite stunned by the complete lack of what I would have previously thought was the bare minimum. And...
I had forgotten about the existence of this group. [Drs With Long Covid] Have they achieved anything? This tweet comes across like the LC issue...
Has anyone reached out to people such as DA who may be sympathetic; if people mention ME/CFS repeatedly in their setup of the problem it will make...
This is what has just been happening to me this last week. :/ It gets worse over several days and sort of peaks until it starts to slowly improve....
Jonathan Davis from Korn says he has Long Covid https://www.spin.com/2022/03/korn-jonathan-davis-covid-lipps-service/ “I’m still fatigued like...
I am also worried about this. I have privacy concerns. I would not want different parties having my notes and information. Is it possible to opt...
MUSC student and Charleston teen at forefront of rare disease breakthrough "When Cortney Gensemer visited her professor during office hours to...
Unfortunately advocates often use words like "multi-system" and "complex" to mean, basically, bad/serious/highly disabling - and that's not what...
Hi Ian. Thanks for these responses, and for engaging here. Just for what it's worth I am an unwell person who would not engage in a pointless...
Camilla Duchess of Cornwall has not yet recovered from a fairly recent covid infection....
I also found it really unclear what this was supposed to be. I still hope there are warnings about PEM communicated to patients and...
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