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  1. Ariel
    Post

    Explain Pain - David Butler and Lorimer Moseley

    Kind of reminds me of Plato's Theory of Recollection....
    Post by: Ariel, Feb 5, 2022 in forum: Pain and Inflammation
  2. Ariel
    Post

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Will there be one? :/
    Post by: Ariel, Feb 5, 2022 in forum: 2020 UK NICE ME/CFS Guideline
  3. Ariel
    Post

    BPS attempts at psychologizing Long Covid

    Long read in the Guardian focussing on Body Politic and Long Covid efforts/psychologization/gaslighting. Author has ME/CFS....
    Post by: Ariel, Feb 3, 2022 in forum: Psychosomatic news - ME/CFS and Long Covid
  4. Ariel
    Post

    United Kingdom: ME Association news

    [MEDIA] This is (rightly) causing some consternation over on twitter :( A very irresponsible message. Quite concerned by the lack of...
    Post by: Ariel, Feb 2, 2022 in forum: News from organisations
  5. Ariel
    Post

    Toronto scientists are trying to crack one of COVID’s biggest mysteries: Its impact on the brain

    From the linked article: "Goulding was helped immensely, she said, by an interdisciplinary rehab program at an integrated-care clinic in...
    Post by: Ariel, Jan 30, 2022 in forum: Epidemics (including Covid-19, not Long Covid)
  6. Ariel
    Post

    Politico: He Was Given 6 Months to Live. Then He Changed D.C. (Brian Wallach ALS)

    How can you effectively study Long Covid without acknowledging that a significant proportion of patients will have developed new ME/CFS? Is this...
    Post by: Ariel, Jan 22, 2022 in forum: General Advocacy Discussions
  7. Ariel
    Post

    Politico: He Was Given 6 Months to Live. Then He Changed D.C. (Brian Wallach ALS)

    Where has this been stated? :( I did not know this
    Post by: Ariel, Jan 21, 2022 in forum: General Advocacy Discussions
  8. Ariel
    Post

    Functional Neurological Disorders - discussion thread

    What are those reasons that this should be contrasted to?
    Post by: Ariel, Jan 20, 2022 in forum: Psychosomatic theories and treatments discussions
  9. Ariel
    Post

    Covid-19 vaccines and vaccinations

    Quite interesting piece. I wonder how similar these reactions are to those reported by some pwME. Really needs to be studied. In rare cases,...
    Post by: Ariel, Jan 20, 2022 in forum: Epidemics (including Covid-19, not Long Covid)
  10. Ariel
    Post

    Valerie Eliot Smith charity complaint

    "We are sorry that you felt upset" is also not an appropriate apology.
    Post by: Ariel, Jan 20, 2022 in forum: General ME/CFS news
  11. Ariel
    Post

    Doctors with ME: Putting it into Practice: What NICE ME/CFS means for GPs

    I am not sure about this. The threshold for being able to say that we can made "positive" diagnoses of ME shouldn't be so high that it's...
    Post by: Ariel, Jan 20, 2022 in forum: Resources
  12. Ariel
    Post

    Valerie Eliot Smith charity complaint

    Update: [MEDIA]
    Post by: Ariel, Jan 20, 2022 in forum: General ME/CFS news
  13. Ariel
    Post

    Politico: He Was Given 6 Months to Live. Then He Changed D.C. (Brian Wallach ALS)

    Has there ever been a significant effort to do DC lobbying for ME/CFS? I realize nobody that well connected has likely become ill/had a family...
    Post by: Ariel, Jan 19, 2022 in forum: General Advocacy Discussions
  14. Ariel
    Post

    The microclots in ME/CFS study has begun

    Is anyone ready to try to replicate their results if they find something?
    Post by: Ariel, Jan 19, 2022 in forum: ME/CFS research news
  15. Ariel
    Post

    Doctors with ME: Putting it into Practice: What NICE ME/CFS means for GPs

    It depends what is understood by "diagnosis of exclusion". Many people don't seem to realize there are (positive) diagnostic criteria. They have...
    Post by: Ariel, Jan 15, 2022 in forum: Resources
  16. Ariel
    Post

    Longitudinal analysis reveals high prevalence of Epstein-Barr virus associated with multiple sclerosis, Bjornevik et al (2022)

    I missed this. I also hope you are feeling better @Jonathan Edwards :heart:
    Post by: Ariel, Jan 13, 2022 in forum: Other health news and research
  17. Ariel
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Is anyone else concerned that she deleted her account or have any insight as to why she did it? I didn't see how it went. I don't want us all to...
    Post by: Ariel, Jan 13, 2022 in forum: Long Covid news
  18. Ariel
    Post

    Complaints from patients with [FND]s: a cross-sectional UK survey of why patients complain and the effect on the clinicians..., 2018, Bolton

    "clinicians who deal with them often become the ‘second victim’ in the process" "Second victim" - who are the first victims, then? Hm.
    Post by: Ariel, Jan 12, 2022 in forum: Other psychosomatic news and research
  19. Ariel
    Post

    Poll: Does taking supplements to 'support' mitochondria at a particular time of day improve your sleep?

    I take ubiquinol but it doesn't help my sleep (and neither do other similar things I have tried). I take it because I found it to improve chest...
    Post by: Ariel, Jan 10, 2022 in forum: Drug and supplement treatments
  20. Ariel
    Post

    Valerie Eliot Smith charity complaint

    Completely inappropriate, unprofessional, and frankly bizarre communications. The invocation of How To Win Friends and Influence People is truly...
    Post by: Ariel, Jan 10, 2022 in forum: General ME/CFS news
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