I have tried not to do too many tweets at him as I don't want it to be twisted, but he seems determined to carry on and has been tweeting...
He seems to not care and is making comments that he wants a NICE "mandated" test to distinguish between such patients. He cannot possibly be this...
He has just been talking about this on twitter - he was mentioning LP & Perrin in a tweet. His twitter feed is infuriating today. It is a...
I was thinking they couldn't use BAME - which would be the simple choice - due to its meaning as "Black, Asian & minority ethnic".
My GP also says ME and in my experience those who don't say it don't understand it at all. It's really dismaying that it's getting worse, to now...
This organization will have to change its name - BAMEC?
Are there any plans to stop referring to it as "CFS/ME"? I know we have other battles but this term should die in my opinion if the new guideline...
The organization has a document on PEM on its website dated Aug 2021 (as is the "dysregulation" document). Did they not have one before? Does...
Thanks for explaining. I have had the illness for a long time and have been helped by my GP (although she is the only one at the practice who will...
Sorry for not knowing but what are the mechanics of this organization being involved with patients? I cannot understand why all of these people...
‘They worry they will never get better’ We will certainly never stop being patronized.
I am afraid I don't understand what BACME do exactly but is there any hope of organizations becoming more supportive over time?
LOL :) From the website: phlebotomy – a procedure to remove some of your blood; this may need to be done every week at first and can continue...
Whoa: "Nevertheless, in 1838, a lecturer at the Royal College of Physicians would still state that "blood-letting is a remedy which, when...
I kind of stopped reading at "Is catching covid now better than-"
Yes, it was surreal to read this in the BMJ!
Callous and context-free.
It seems that she isn't involved here (?) but to state the obvious Dr Myhill should be nowhere near this; she is not a good representative of the...
It is frankly an invitation for them to roll out Paul Garner again
"Andrew Goddard, president of the Royal College of Physicians, said: "We were extremely concerned that the final guidelines proposed by NICE may...
Separate names with a comma.
