If documents harm patients they should be withdrawn. If organisations fail to do that they are part of the problem. I am in agreement with this...
To me that just sounds like something that would stop you from getting better by impeding proper rest: "rehabilitation", but also lots of it as...
How would "interdisciplinary rehabilitation" stop people getting worse?
Does anyone know why on earth this is? :(
Sounds like a responsible way of dealing with the subject matter :facepalm:
We could do with someone to counteract the PG narrative in the UK - who are they? I hope this programme was helpful. I cannot investigate further...
I remember someone making this point in one of the letters responding to some of this pro-GET and CBT stuff we've been seeing lately in response...
I know this has been covered, but ??? Huh? :alien:
Great idea; any chance of this happening? Would be a breakthrough.
Yes, her tone seems to have shifted somewhat recently - particularly since she may have seen that long covid is, too, being dismissed and that the...
The CDC seems to have had real trouble figuring out whether people should be wearing masks during a pandemic, so this kind of thing seems like...
The BBC's appalling coverage of long covid appears to be intensifying recently. Re: testing, where did this idea come from that you cannot...
"...elements of LP which could be explored in future interventions or research aiming to improve clinical outcomes for children with CFS/ME" :(...
Sorry if this has been covered, but do you think fibromyalgia is a distinct condition? Do the people diagnosing it think this?
"The areas of expertise that have been suggested are wide-ranging, from people who have severe ME/CFS or care for people with ME/CFS, to people...
What are the ethics standards for mouse studies, if any? This made me weirdly sad. (See profile pic) :( Edit: sorry about my silly posts...
(I have the same comment about lack of PEM/PESE surveillance as in the last update!) :( Pretty fed up with the lack of tracking of this symptom...
I have previously been quite shocked to hear about large "standard" US salaries amongst non-low-wage/etc earners, including of recent college...
Yikes, some of these are quite bad imo. Can anyone just write one of these? I would have done it the other day, as I had the energy. It is...
Same - I have one doctor who helps me at the practice and she knew me before. (I am terrified of her retiring). However she also once told me a...
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