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  1. Ariel
    Post

    CFS is on the MLA list of topics that must be taught to UK medical students from 2024/2025

    Is there any way to get details or confirmation of what is actually being taught? Learning something wrong is often worse than not learning...
    Post by: Ariel, Jan 2, 2023 in forum: General ME/CFS news
  2. Ariel
    Post

    Long Covid in the media and social media 2023

    Can someone expand on this? I am not hugely familiar and this stuff with Ashworth seems really worrying. :(
    Post by: Ariel, Jan 2, 2023 in forum: Long Covid news
  3. Ariel
    Post

    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    Can anything be done about this? Editors should be made aware. Determined individuals with agendas like this should not be able to publish hit...
    Post by: Ariel, Dec 13, 2022 in forum: Psychosomatic news - ME/CFS and Long Covid
  4. Ariel
    Post

    Psychology Today: Gaslighting Behavior Is a Sign of Weakness

    This is amazing.
    Post by: Ariel, Dec 11, 2022 in forum: Other health news and research
  5. Ariel
    Post

    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    To me this piece is bait for the US "left" tendency to produce contrarian think-pieces usually written by men such as Yglesias, and it seems he...
    Post by: Ariel, Dec 11, 2022 in forum: Psychosomatic news - ME/CFS and Long Covid
  6. Ariel
    Post

    Long Covid in the media and social media 2022

    This one is truly the worst one I have seen for a while. Yawning?? Fake yawning? I would write to them, but cannot at present.
    Post by: Ariel, Nov 30, 2022 in forum: Long Covid news
  7. Ariel
    Post

    USA: News from #MEAction

    I feel like only something like the ACT UP protests/etc decades ago on AIDS are going to get anyone's attention to solve this mess.
    Post by: Ariel, Nov 26, 2022 in forum: News from organisations
  8. Ariel
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I received my confirmation that the kit was received by Decode ME. It took between 3-4 weeks, I think. I thought the message was worded in a kind,...
    Post by: Ariel, Nov 23, 2022 in forum: Recruitment into current ME/CFS research studies
  9. Ariel
    Post

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    Does anyone have any thoughts on this? [MEDIA]
    Post by: Ariel, Nov 16, 2022 in forum: Blood (e.g. coagulation, cell stiffness)
  10. Ariel
    Post

    Can we get large-scale observational data on PwME's Covid outcomes to get us on priority list for treatments and vaccine boosters?

    Does anyone know if they will make the COVID jabs available privately in the manner of flu shots and if not why not? I don't really understand...
    Post by: Ariel, Nov 2, 2022 in forum: Long Covid news
  11. Ariel
    Post

    These Doctors Admit They Don’t Want Patients With Disabilities, NYT

    What about in the UK, though?
    Post by: Ariel, Oct 20, 2022 in forum: Other health news and research
  12. Ariel
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Has news of the study been shared adequately in Long Covid networks in order to recruit the LC MECFS patients? I have seen a bunch of ME folks...
    Post by: Ariel, Oct 12, 2022 in forum: Recruitment into current ME/CFS research studies
  13. Ariel
    Post

    Ebola

    I wonder what would have happened if covid regularly produced more "cosmetic" effects.
    Post by: Ariel, Oct 7, 2022 in forum: Epidemics (including Covid-19, not Long Covid)
  14. Ariel
    Post

    Ebola

    I wonder how people will react if it comes to the US, now that everyone is ignoring covid, a much more transmissible disease. Will there be Ebola...
    Post by: Ariel, Oct 7, 2022 in forum: Epidemics (including Covid-19, not Long Covid)
  15. Ariel
    Post

    Long Covid in the media and social media 2022

    They might do a correction/edit if someone pointed it out to explain the issue. I think a lot of people just write "chronic fatigue" unthinkingly...
    Post by: Ariel, Oct 7, 2022 in forum: Long Covid news
  16. Ariel
    Post

    ‘Electrifying’ book about women with disabilities sells for six figures - Frances Ryan book

    I am very excited about the book and hopeful about its effect on the publishing industry/ potential knock-on effects in terms of disability...
    Post by: Ariel, Oct 7, 2022 in forum: General disability topics and advocacy
  17. Ariel
    Post

    Prevalence of MUS in adults who are high users of healthcare services and magnitude of associated costs: a systematic review 2022 Jadhakhan et al

    I would be interested in how many of us have lower than usual healthcare use due to avoiding healthcare due to bad experiences/futility,...
    Post by: Ariel, Oct 6, 2022 in forum: Other psychosomatic news and research
  18. Ariel
    Post

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    There is hardly any good information on this website. :(
    Post by: Ariel, Oct 5, 2022 in forum: News from organisations
  19. Ariel
    Post

    Factors that influence how relationships adjust to a diagnosis of chronic fatigue syndrome: A grounded theory, Swinton, 2022 (thesis)

    Unfortunately I don't see how anything positive could come from this kind of framing, particularly in the context of potential couples'...
    Post by: Ariel, Oct 5, 2022 in forum: Psychosomatic research - ME/CFS and Long Covid
  20. Ariel
    Post

    Pulse Today ("the leading publication for GPs in the UK"): "Long Covid: Explaining the unexplainable?"

    This is just so sad. :(:broken_heart:
    Post by: Ariel, Oct 5, 2022 in forum: Psychosomatic news - ME/CFS and Long Covid
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