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  1. Ariel
    Post

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    [MEDIA] [MEDIA]
    Post by: Ariel, Jun 8, 2022 in forum: Blood (e.g. coagulation, cell stiffness)
  2. Ariel
    Post

    Nature - Long COVID after breakthrough SARS-CoV-2 infection by Al-Aly et al, 2022

    I am glad to hear you are feeling a bit better :heart:
    Post by: Ariel, May 25, 2022 in forum: Long Covid research
  3. Ariel
    Post

    UK: MRC ( Medical research Council) Survey on Public Involvement in Research, closes 27th May 2022

    Has anyone filled out this survey and has any thoughts to share? I would like to do it but I am unsure what kinds of comments would be helpful....
    Post by: Ariel, May 15, 2022 in forum: Research methodology news and research
  4. Ariel
    Post

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    I don't understand the force behind persisting in saying that CBT and GET can be "management tools in the right setting" (Unger on screenshot)....
    Post by: Ariel, May 15, 2022 in forum: News from organisations
  5. Ariel
    Post

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    Who or what is behind people like this being invited to speak at such meetings and calls?
    Post by: Ariel, May 14, 2022 in forum: News from organisations
  6. Ariel
    Post

    "The Why: The Historic ME/CFS Call To Arms": new book by Hillary J Johnson

    Is this really true, though? Proponents of psych/behavioural approaches do it for a reason.
    Post by: Ariel, May 14, 2022 in forum: General ME/CFS news
  7. Ariel
    Post

    Increased spontaneous fronto-central oscillatory power during eye closing in patients with multiple somatic symptoms, 2022, Xiquan et al

    I have never understood how people managed to convince anyone of this, that they were somehow going to talk people out of some hypothesised form...
    Post by: Ariel, May 11, 2022 in forum: Other psychosomatic news and research
  8. Ariel
    Post

    Long Covid in the media and social media 2022

    Instant relief from what???
    Post by: Ariel, May 11, 2022 in forum: Long Covid news
  9. Ariel
    Post

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Did they replace them with other patients? Does anyone know?
    Post by: Ariel, May 8, 2022 in forum: ME/CFS research news
  10. Ariel
    Post

    BPS attempts at psychologizing Long Covid

    Gez M has been causing this kind of trouble since I first became aware of him. I am sure he is familiar with the issues, as he has faced rounds of...
    Post by: Ariel, May 7, 2022 in forum: Psychosomatic news - ME/CFS and Long Covid
  11. Ariel
    Post

    United Kingdom: Independent SAGE

    Sorry if this is really obvious but what was Fiona Fox hoping to achieve by going on with Indie Sage?
    Post by: Ariel, May 7, 2022 in forum: Advocacy Projects and Campaigns
  12. Ariel
    Post

    The '25% have severe ME' statistic

    Is there any sense of what kind of policy this is about or would affect? I am glad someone (seemingly) cares about this, but to what end?
    Post by: Ariel, Apr 27, 2022 in forum: Epidemiology (incidence, prevalence, prognosis)
  13. Ariel
    Post

    United Kingdom: Independent SAGE

    Reports from today's meeting on Long Covid: [MEDIA] [MEDIA] [MEDIA] [MEDIA]
    Post by: Ariel, Apr 22, 2022 in forum: Advocacy Projects and Campaigns
  14. Ariel
    Post

    United Kingdom: News from Forward-ME Group

    Why? Because it would get people's backs up unnecessarily, or the practicalities or? I agree there are better things to focus on.
    Post by: Ariel, Apr 20, 2022 in forum: News from organisations
  15. Ariel
    Post

    Long Covid in the media and social media 2022

    I was puzzled about this too, as Slavitt's comments have been vey bad in the past. I get the sense here that he is just repeating what he has been...
    Post by: Ariel, Apr 19, 2022 in forum: Long Covid news
  16. Ariel
    Post

    Who is Simon Wessely?

    Is this "medical royalty" photo op conversation available online anywhere? Utterly appalling and reflects poorly on the judgement and views of...
    Post by: Ariel, Apr 18, 2022 in forum: Psychosomatic news - ME/CFS and Long Covid
  17. Ariel
    Post

    Postexertional Malaise Syndrome?

    What about just naming it after a patient? The trend is not to use names anymore but why not name after patients? (Has this been done?)
    Post by: Ariel, Apr 13, 2022 in forum: General Advocacy Discussions
  18. Ariel
    Post

    Postexertional Malaise Syndrome?

    What were the reasons SEID didn't work out? It seems pretty good to me.
    Post by: Ariel, Apr 12, 2022 in forum: General Advocacy Discussions
  19. Ariel
    Post

    Postexertional Malaise Syndrome?

    Is there something good about "syndrome"? Disorder?
    Post by: Ariel, Apr 12, 2022 in forum: General Advocacy Discussions
  20. Ariel
    Post

    Fatigue - is it the main symptom of ME/CFS and Long Covid? Discussion thread

    For me "fatigue" is something that is currently happening to you. PEM represents something that would hypothetically happen to you if you did...
    Post by: Ariel, Apr 11, 2022 in forum: Post-Exertional malaise and fatigue
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