@Adam pwme Great, thank you so much ! :) Good to know about the transcript, but very useful anyway, for those unable to watch moving images.
@Adam pwme Excellent film! I'm so impressed with your work! This film is being shared a lot in the Swedish ME community and to health care...
Same here, eating, standing, heat:(... I do not mind sitting and lying but eating, come on, that is just evil! I have not had POTS confirmed with...
I can't see that helping either, and it's so patronizing, implying we are to ignorant to know what's good for us. Thanks for the support...
Right!!! It looks to me as if they don't even understand what they're saying themselves, if they did, at least it should say "pacing" instead of...
I have read the thesis in its enterity in Swedish. It's to long to translate, but I have translated some statements that I find troublesome or...
Fun fact: I was born in Sundsvall and lived there the first 20 years of my life :). It’s a rather large city located almost in the middle of...
What a word salad! :sick: Extensive research? Really?
Thank you @mango, for giving a (sadly) very accurate overview of the ME care situation in Sweden. The only place I would recommend to visit is...
It now says "audio has expired". :(
Thank you @inox :)
Thank you @Milo! Asking for a friend, I will let her know :).
I guess it's used that way a lot, yes, sadly:(
Does anyone have access to the Ethical application and/or research protocol for Liens study? Or knows how one might get access?
I agree completely. Nobody is saying you should. Accepting what is, is in no way opposed to simultaneously seeking ways to improve the situation....
It's more about identifying what your core values are and choosing behaviors based on them, rather than changing our values. Essentially their...
As @mango wrote earlier in the thread, this study is connected to the ACT-study by the same researcher team. Both studies are part of Jonsjö's...
@Hip @rvallee OK, thanks for explaining. I stand corrected. But when the suggested treatment for said sickness behavior, eg symptoms, is to ignore...
From the article, my bolding: Isn't using the term sickness behavior and theorizing that persistent sickness behavior is causing symptoms in...
This is absolutely horrific!! :cry::cry::cry:
Separate names with a comma.
