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  1. Anna H
    Post

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    This was posted on the Swedish campaign #MEvårdsaknas last week. I'm afraid it contains a lot of marketing, but it also raises some concerns...
    Post by: Anna H, Dec 16, 2019 in forum: Recruitment into current ME/CFS research studies
  2. Anna H
    Post

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    Here's a post I wrote regarding this study from another thread. As you can see PEM isn't even mentioned as a risk, but a possible 'fear of...
    Post by: Anna H, Dec 3, 2019 in forum: Recruitment into current ME/CFS research studies
  3. Anna H
    Post

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    I have Google translated (major errors corrected) the study protocol in it's enterity. That way everyone can read it for themselves and there's...
    Post by: Anna H, Dec 1, 2019 in forum: Recruitment into current ME/CFS research studies
  4. Anna H
    Post

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    A Swedish translation is coming soon! It just needs some additional proofreading:)
    Post by: Anna H, Nov 29, 2019 in forum: Resources
  5. Anna H
    Post

    “Investigating ME/CFS at the intersection of the nervous and immune systems.” Speaker: Dr. Michael VanElzakker Oct 26 2019

    Available on their YouTube channel now. Very interesting talk! [MEDIA] Q&A: [MEDIA]
    Post by: Anna H, Nov 26, 2019 in forum: General ME/CFS news
  6. Anna H
    Post

    News from Scandinavia

    Couldn't agree more!! :)
    Post by: Anna H, Nov 23, 2019 in forum: Regional news
  7. Anna H
    Post

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    I'm sorry that the opening post is perceived as muddled . I originally wrote it as a comment in another thread, mainly to point out my concerns...
    Post by: Anna H, Nov 21, 2019 in forum: Recruitment into current ME/CFS research studies
  8. Anna H
    Post

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    I might have used Bragée both in reference to the Bragée clinic and Bragée himself, sorry for that confusion. This study is part of Björn Bragées...
    Post by: Anna H, Nov 21, 2019 in forum: Recruitment into current ME/CFS research studies
  9. Anna H
    Post

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    Yes it does, and in the lengthy response from the Ethical Review Board they question this: "5. It seems unreasonable for people suffering from ME...
    Post by: Anna H, Nov 21, 2019 in forum: Recruitment into current ME/CFS research studies
  10. Anna H
    Post

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    Yes, only 20 patients are offered to fly back and forth to London for an upright MRI during one and the same day. As I wrote in another thread :...
    Post by: Anna H, Nov 20, 2019 in forum: Recruitment into current ME/CFS research studies
  11. Anna H
    Post

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    Couldn't agree more! Yeah, what's really going on here doc?
    Post by: Anna H, Nov 19, 2019 in forum: Recruitment into current ME/CFS research studies
  12. Anna H
    Post

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    Thanks for checking up on that@mango!:thumbup: There doesn't seem to be anything in there supporting his claim that it's in the diagnostic...
    Post by: Anna H, Nov 19, 2019 in forum: Recruitment into current ME/CFS research studies
  13. Anna H
    Post

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    Here's what's listed under 'Ethical considerations' as potential risks. If one didn't know this was a study that involved ME-patients, you...
    Post by: Anna H, Nov 19, 2019 in forum: Recruitment into current ME/CFS research studies
  14. Anna H
    Post

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    Another excerpt from the study protocol, where they argue that the fact patients need to lay down to relieve symptoms is another reason an upright...
    Post by: Anna H, Nov 19, 2019 in forum: Recruitment into current ME/CFS research studies
  15. Anna H
    Post

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    Here's the basis for their hypothesis that there is interference with 'interoceptive signaling' in ME. Even they seemingly admit to it being...
    Post by: Anna H, Nov 19, 2019 in forum: Recruitment into current ME/CFS research studies
  16. Anna H
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Further down in the document the Ethical Review Board has a lengthy comment with questions and request for changes, where they also ask the...
    Post by: Anna H, Nov 17, 2019 in forum: ME/CFS research news
  17. Anna H
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I don't think there are any disconnections, only politics and crude reality I'm afraid . Jonas Bergquist needs patients to be able to get...
    Post by: Anna H, Nov 17, 2019 in forum: ME/CFS research news
  18. Anna H
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Yes only 20 patients are planned to fly to London, which is also what I said: My main concern, which even the Ethical Review Board agrees with,...
    Post by: Anna H, Nov 17, 2019 in forum: ME/CFS research news
  19. Anna H
    Thread

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    Bragée Clinic in Sweden is planning a study looking at 'Craniocervical dysfunction, neuroinflammation and infection in ME/CFS ws healthy controls'...
    Thread by: Anna H, Nov 17, 2019, 105 replies, in forum: Recruitment into current ME/CFS research studies
  20. Anna H
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Bragée Clinic in Sweden is planning a study looking at 'Craniocervical dysfunction, neuroinflammation and infection in ME/CFS ws healthy controls'...
    Post by: Anna H, Nov 16, 2019 in forum: ME/CFS research news
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