My personal experience is that sensory issues such as noise result in rapid fatiguability which is different to PEM, though confusingly they can...
Haven’t they always charged for it, whilst also sending free copies to nominated medical professionals.
This adds to the confusion as she has in interviews said she has had Lyme’s but not clarified how this relates to her reported ME/CFS. (NB Though...
I agree. The more the board defends the indefensible the worse the future of the MEA looks. We have a small number of individuals who have put an...
You must be right, I just didn’t believe enough that I was going to win the jackpot. The only solution is to buy more lottery tickets. Undoubtedly...
I think Colin’s replies to a couple of posts were still there in the early afternoon, but are now gone. They certainly were there a while after...
Interesting that Colin Barton’s more recent comments have also been disappeared, but mine remains. I would have thought his no less controversial...
As @Trish has regularly pointed out we desperately need a consensus on terminology so we can say if an immediate response to exertion is rapid...
I would make a distinction between my current symptoms worsening and the underlying condition worsening, though I find it hard to find the...
The trustees are bound to act in accordance with the articles of association, which is why it is so important getting them right. Also to alter...
And I just bought a lottery ticket, you don’t mean I am not going to win, because I have faith that I will win and because I know one person who...
Have added a comment on the Facebook post (aprox 12.20), so thought I would copy it here in case it also disappears:
Thank you, I had spotted and corrected this, but not before you had read the post.
What I find bizarre is this recent obsession with medicine by anecdote, by so called proponents of evidenced based medicine. The defendants of...
Though I am not optimistic, let’s hope the Trustees do not use promised future action as a way of ignoring current concerns.
There is the old idea that the patient’s belief in their doctor is part of the curative process. The idea that patients are more likely to improve...
Way back in the last century when I was still working, I set up training courses on feeding for social service staff working with adults with...
I have not yet read the paper and it is great to see attempts to define specific cognitive issues, however word finding difficulties are...
When I attended the nearest ME/CFS specialist services some twenty years ago, I had stopped work but was at the milder end of moderate. It was...
I did some fifteen years ago have a course of CBT aimed at getting more comfortable with doing less. I always found pacing difficult for me...
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