How do we get people to understand this key point, when so many of even those that we see as positive advocates for ME/CFS don’t get this? How do...
Would it be worth replying, asking if they are addressing all our complaints, given they refer to ‘complaint’ in the singular, or if not which are...
Thank you.
(In the UK). I had already booked in with my GP for the flue jab, but had thought I wasn’t eligible for the Covid jab. However I got an email...
Thank you @Trish.
Do we know when the ‘writing group’ submitted their draft ‘protocol’ to Cochrane in preparation for consultation? Given the writing group were...
Given Hilda’s personal Blog page on this is obviously failing as a meaningful channel of communication, with no indication that information there...
It is not uncommon for me in PEM to have both nausea and hunger pangs. I both want to eat and don’t want to eat at the same time. Definitely not...
I don’t know if it is still the case, but in Sheffield consultant referrals for ME/CFS were sent to ID. However when I was seen by them some...
Welcome @Karen Hargrave and thank you for your advocacy work and for commenting here.
Yes. Ideally people would be supported to an appropriate level to live with their ME as well as they could, such that any request for assisted...
We have the example of Canada that illustrates some of the complexities: in Canada generally people with ME are unable to claim appropriate...
Was the issue that ‘this would include people within the condition, if diagnosed on the basis of these questionnaire responses, that do not have...
A relative was very ill over a couple of years. The doctors thought he had some sort of infection in his leg but it did not respond to...
Why do so many researchers/clinicians feel obliged to overstate what we currently know? Why can’t they just say we don’t know the aetiology, but...
I agree I too have generally been over optimistic in relation to my ME. I have always assumed any deterioration is transient and that any...
I think the problem is that the UK specialist clinics and BACME genuinely believe they are helping people and that the false positivity of...
I have forgotten my statistics, but if someone said that a family where everyone was either four foot tall or eight foot tall was statistically...
A great result, thank you to @Trish and everyone involved for the work put into this. Though in an ideal world they would have not needed this...
Isn’t part of the problem with CBT as often currently formulated that it was seized upon as part of the process model of health care? You define...
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