Thank you this link got me through.
I am struggling with the link, tried several browsers
My concern is that it is only meaningful for the very mild who are the only people with ME served by most specialist services, for every one else...
Sorry my brain is not currently able to process this thread, but I do agree that there is a strong chance that to understand the aetiology of ME...
@PhysiosforME illustrate that Physios can get (ie understand) ME and what their role can be. [sorry cross posted with @Trish ]
As always, a well thought through blog post with some very important points.
More of the same. So we still have no idea which of our complaints they are investigating and which they are not. This tells us nothing about...
Thank you @tuppence, an important perspective.
Thank you to the Committee and everyone for persisting in this head butting of the brick wall that is Cochrane. After all these years of them...
Colleen Steckel provides a useful overview of information and articles relating to the inquest, see Inquest into death of Maeve Boothby O’Neill...
Does any one else find this chilling? Given we are looking at a neurodivergent population can we know that what is being labelled ’FND’ here...
An excellent article, Claire Every is real developing a good understanding of ME, but will the people that need to read this ever see it or if the...
I have never understood how believers of the deconditioning model think it can explain the variation within ME. I have a relapsing and remitting...
It is a decade since getting a bus has been an option for me.
The Baxter et al research by it nature only dealt with patients who survived the ordeal of health service disbelief and inertia, how many people...
Such a powerful and compelling account. Also crying.
Do you mean Leeds?
In theory the individual questions are irrelevant, what matters is how your answers compare to other people completing the same questionnaire. In...
‘Feeling better’ is no doubt a good thing, and I would be happy if I could feel better all the time, but that is not enough. I could ‘feel better’...
I thought I had previously read the Leeds inpatient service had shut, however it seems that it is still there (see...
Separate names with a comma.
