I think this is probably also behind the recovered patient exercise gurus advocating their particular exercise programs that we regularly see in...
Association is not causation, but more so cooccurrence is not association. Otherwise you just need to try lots of different coloured socks when...
That makes all the difference. I met a group of UFO spotters once, but I knew they were genuine as they all had laminated ID cards with their...
Will emergency services be on hand in participants with ME’s own homes the next day or following weeks when PEM kicks in or months later if...
On a personal level though orthostatic intolerance is an important factor in managing my activity I don’t think (have not been formally assessed)...
A very useful account, though it perhaps leaves us with more questions than answers.
I loved how scrupulously accurate you are, @Jonathan Edwards , in what you say, whilst also highlighting the absolute need for urgent action with...
My barber very inconsiderately moved to South Africa some thirty years ago, so since I developed ME I have been doing the same.
True but also part of nineteenth century ‘science’ was natural history, detailed thorough observation. However the BPS advocates are not even...
I am not totally convinced that these explanations are even ‘grounded in 19th century scientific methods’. My knowledge of Freud and...
A fantastically successful five years, wishing you all the best for the next five and onwards.
I agree, for me, now I have got out of rolling PEM and am not continuously feeling desperately unwell, the measure that seems to mean most is how...
I had no issues with orthostatic intolerance prior to my ME’s onset, and was not aware of it as an issue for some years into my ME. At first some...
This may have been posted elsewhere but this article by Cort Johnson discusses recent research comparing GWI and ME/CFS in relation to exercise...
Yes, my first thought on reading the suggestion that the best response to Long Covid is to scale up existing responses to ME/CFS was please no....
For anyone like me who struggles to read/remember acronyms: The Organization for Economic Cooperation and Development “The Organization for...
When I think of friends and family currently undergoing chemo, their life is taken up with managing their life in the face of cancer. Major life...
Anecdotally we quite often hear about interventions that seems to work at first but then very quickly no longer works. Does this happen often...
Sorry my memories is so bad, but isn’t there the example of a South East Asian country with a high level of ME/CFS that is linked to a particular...
There is Millions Missing France/ Des millions d'oubliés https://millionsmissing.fr/
Separate names with a comma.
